Webinar
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
All About FXTAS
Zoom WebinarCENTRAL TIME ZONE Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn
All About Deep Brain Stimulation
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at deep brain stimulation and Ataxia. We will cover: What is DBS? How can DBS be used to treat Ataxia? What are the limitations or concerns about DBS? What research is being done right now on DBS? Register: Click here. Other
Everyday Products for Accessible Living
Zoom WebinarCENTRAL TIME ZONE Join us as we share everyday products for accessible living that have been picked and reviewed by individuals with disabilities. Find out what factors they considered and whether or not they continued to use the products over time, and see video demonstrations from the reviewers themselves. Vote for the theme of the
Research and Treatment Development for FXTAS
Zoom WebinarCENTRAL TIME ZONE Do you or a loved one have a FXTAS? Our expert will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts.
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_ArZZ-DjtTQOrAbEOtr2cPA Please do not submit questions
All About Spastic Paraplegia Type 7
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spastic Paraplegia Type 7, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Gerald Pfeffer, MD, PhD
All about X-Linked Cerebellar Ataxia (XLCA)
Zoom WebinarCENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of X-Linked Cerebellar Ataxia (XLCA), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into these diseases. XLCA includes several different conditions, such as X-linked
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
