Webinar
-
NORD: Alone we are rare. Together we are strong®
Zoom WebinarCENTRAL TIME ZONE NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, they elevate care, advance research, and
FREE -
All About Gene Therapy
Zoom WebinarCENTRAL TIME ZONE In this session, we will learn what gene therapy is, the different types of gene therapy, and how gene therapy could be used to treat Ataxia in
FREE -
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
FREE -
All About FXTAS
Zoom WebinarCENTRAL TIME ZONE Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey,
FREE -
All About Deep Brain Stimulation
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at deep brain stimulation and Ataxia. We will cover: What is DBS? How can DBS
FREE -
Everyday Products for Accessible Living
Zoom WebinarCENTRAL TIME ZONE Join us as we share everyday products for accessible living that have been picked and reviewed by individuals with disabilities. Find out what factors they considered and
FREE -
Research and Treatment Development for FXTAS
Zoom WebinarCENTRAL TIME ZONE Do you or a loved one have a FXTAS? Our expert will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of
FREE -
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
FREE -
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without
FREE -
All About Spastic Paraplegia Type 7
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spastic Paraplegia Type 7, the typical diagnostic journey for
FREE
