NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually only happens to very young Read More…
I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the programs football and basketball games Read More…
Guest Author: Ellie Martin Tai Chi is an ancient Chinese martial art that has been around for thousands of years and has evolved into a practice focused on enhancing balance, Read More…
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