NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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Ataxia Tips Real advice from real people living with Ataxia. SUBMIT A TIP RECENT TIPS FOLLOW #AtaxiaTipTuesday Living with Ataxia means adapting every day—and sometimes, it’s the little tips that make a big difference. This series features real advice from real people in the Ataxia community—simple things they’ve done to Read More…
Guest Author: Camille Johnson Moving is one of those life events that sits at the intersection of stress and excitement, but for people living with Ataxia, it’s a different kind of math entirely. The logistics don’t just ask for planning—they demand precision. And while well-meaning friends may offer up Pinterest checklists Read More…
Guest Author: Ellie Martin Summer is here! I’ve put together a list of products that might be particularly useful during this time of year. Many of these products have been suggested and reviewed by Day Undefined, a website of everyday products for accessible living. All of the products that they Read More…
Guest Author: Ellie Martin Seeking effective methods for healing and growth is significant for rehabilitation. Equine Assisted Therapy, a unique form of therapy that provides the connection between humans and horses to promote emotional well-being, psychological healing, and personal development is growing in popularity with significant positive results. Equine Assisted Read More…
Guest Author: Ellie Martin We all have days where we just don’t feel like ourselves and any task can seem overwhelming or impossible to achieve. Mental health holds significance for overall well-being and quality of life. Navigating the challenges of life with Ataxia can be difficult. Therefore, prioritizing mental health Read More…
Guest Author: Ellie Martin Traveling can be stressful, but it gives us the opportunity to go exploring. Whether it’s traveling to meet a friend, going on vacation, or traveling for work, it offers us to explore new cultures, meet people, and create memories. For individuals with Ataxia, traveling can present Read More…
Guest Author: Ellie Martin Over the years, technology has become a widely used tool for therapeutic programs and rehabilitation research. By replicating real-life scenarios in a controlled environment, simulation training offers a safe and effective way to assess and improve balance skills. The advances in technology have become a good Read More…
Guest Author: Ellie Martin Tai Chi is an ancient Chinese martial art that has been around for thousands of years and has evolved into a practice focused on enhancing balance, harmony, and well-being. Tai Chi consists of a series of slow, flowing movements that are performed with deep breathing and Read More…
Guest Author: Karen Winston Exploring the great outdoors has never been more accessible! Karen shares a fantastic opportunity that’s perfect for those eager to immerse themselves in nature. Learn about the free all-terrain wheelchair program available in many state parks across the United States. These specially designed Action Trackchairs are Read More…
Guest Author: Ellie Martin Ellie, who has Cerebellar Ataxia, tried out the BoBo Core Training Balance Board and shared her experience. The interactive balance board pairs with a versatile app to offer an experience that is different from traditional exercise equipment. Check out her review of this unique fitness tool… Read More…
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