Your donation DOUBLED through April 30 thanks to anonymous donors who pledged to match your gift! DONATE NOW!
Your donation DOUBLED through April 30 thanks to anonymous donors who pledged to match your gift! DONATE NOW!
As interest from the pharmaceutical industry in developing drugs to treat Ataxia continues to grow, we at the National Ataxia Foundation believe that collaboration among researchers, clinicians, pharmaceutical companies, and Ataxia patients has reached a critical moment. Each of these groups must work together, as partners, to advance progress toward better patient care and more effective treatments for Ataxia. The time is now!
Our 2020 Annual Ataxia conference was cancelled because of the coronavirus pandemic. However, many of our scheduled speakers agreed to host virtual presentations on their topics.
Your Voice In Drug and Therapy Development
Jeremy Schmahmann, MD
Ataxia Research Comes Full Circle
Harry Orr, PhD
Drug Development: Ataxia Drug Discovery Pipeline
Susan Perlman, MD and Vikram Shakkottai, MD, PhD
Patients as Research Collaborators
Pravin Khemani, MD, David Brunnert, Sandy Read, and Julie Geye
A Wholehearted Life: One Step at a Time
Terry Chase, ND, MA, RN
Mobility and Exercise: Strategies to Keep Moving While “Sheltering in Place”
Jennifer Millar, MSPT and Jennifer Keller, PT, MS
Genetic Testing
Emily Todd, MS, CGC
Living and Coping with Ataxia
Charlotte DePew, Destinee Juarez, and Deserae Anderson
Clinical Care for Ataxia
Abigail Collins, MD, Trevor Hawkins, MD, and Lauren Seeberger, MD
Living Will with Ataxia – A Palliative Care Approach
Christina Vaughan, MD, MHS
Strategies for Home Management of Speech, Swallowing, and Cognitive Deficits
Amanda Gallagher, MA, CCC-SLP
10 Basic Financial Steps for Special Needs Caregivers
Kelly Piacenti and Jerry Hulick, CLU, ChFC, ChSNC, CLTC
Adaptive Recreation
Linda Snider, Chelsea Elder, Michael Cammer, and David Thomson
Pharmaceutical Industry Panel
Facilitator: George (Chip) Wilmot, MD, PhD
Panelists: Melissa Beiner, MD, and Michael Curtis, PhD
We invite world-leading Ataxia researchers and physicians to present at AAC. The 2020 Annual Ataxia Conference keynote speaker will be Dr. Jeremy Schmahmann. Other speakers to be announced.
KEYNOTE SPEAKER. Professor of Neurology at Harvard Medical School and Neurologist at the Massachusetts General Hospital.
Clinical Professor of Neurology and Director of the Ataxia Center at UCLA Medical Center
NAF Research Director, Director of Institute for Translational Neuroscience, and Tulloch Professor of Genetics in the Department of Laboratory Medicine and Pathology at University of Minnesota
Neurologist at Swedish Neuroscience Institute Movement Disorders Center.
Director of the Duke Center for Neurodegeneration & Neurotherapies
Associate Professor of Neurology, Molecular and Integrative Physiology at the University of Michigan
Speech-Language Pathologist with the Johns Hopkins Outpatient Brain and Stroke Rehabilitation Program and the Johns Hopkins Ataxia Center.
Genetic Counselor at the Adult Medical Genetics Program, University of Colorado Health system
Research Physical Therapist at Johns Hopkins Laboratory of Vestibular Neuro Adaptation.
Professor of Neurology at Emory University.
Chief Scientific Officer at Cadent Therapeutics.
Director of Research and Development at Biohaven Pharmaceuticals.
Neurologist specializing in Movement Disorders.
Assistant Professor at the University of Colorado and Co-Director of the University of Colorado Ataxia Clinic.
Pediatric Movement Disorders Neurologist at Children's Hospital Colorado.
Chief of the Section of Neuro-Palliative Care at the University of Colorado.
Questions about speaking opportunities?
Contact Lori Shogren, Community Program and Services Director at 763-231-2743 or lori@ataxia.org.
Thanks to all sponsors of the 2020 Annual Ataxia Conference for helping make this incredible program available to our community.
Interested in becoming an exhibitor or sponsor?
Contact Joel Sutherland, Development Director at 763-231-2748 or joel@ataxia.org.
Our event volunteers contribute to the success of the Annual Ataxia Conference. There are many opportunities to participate. To learn about volunteer opportunities, contact Mollie Utting, Communications Coordinator, at 763-553-0020 or mollie@ataxia.org.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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