Join the Summer Match Challenge! All donations will be matched by the Clementz-Peterson Family Fund and an anonymous donor through July 15th, up to $100K. DONATE
Join the Summer Match Challenge! All donations will be matched by the Clementz-Peterson Family Fund and an anonymous donor through July 15th, up to $100K. DONATE
Advocacy events bring the Ataxia community together to push for progress. Whether you’re meeting with lawmakers, attending educational sessions, or raising awareness in your local community, these events are a chance to make your voice heard. Join us or our advocacy partners to learn, connect, and take meaningful action for a better future for people living with Ataxia.
2025 United Against Ataxia Hill Day: September 17 – Website coming soon!
International Ataxia Awareness Day: September 25 – www.ataxia.org/international-ataxia-awareness-day/
Rare on the Road Leadership Tour – Stay tuned for next year’s dates – everylifefoundation.org/rare-on-the-road/
Rare Disease Day: Week of February 28th – rarediseases.org/rare-disease-day/
Abilities Expo – www.abilities.com/expos/
Rare Across America: August 5-16th – rareadvocates.org/voter-voice
Global Genes RARE Patient Advocacy Summit: September 25-28th – globalgenes.org/event/patient-summit/
NORD Rare Diseases Summit: October 20-22nd – rarediseases.org/summit-overview/
Undiagnosed Day: April 29th – rareundiagnosed.org/april-29th-is-undiagnosed-rare-disease-day/
