ATAXIA IN THE NEWS

• Elbert County News
  August 14, 2017
  ’I felt like I could do anything’ Parker man reaches new heights with adaptive climbing wall
• Reata Pharmaceuticals
  August 7, 2017
  FDA Confirms That Use of mFARS as Primary Endpoint in Part 2 of the MOXIe Trial Can Support Approval of Omaveloxolone in Friedreich’s Ataxia
• Business Insider
  August 7, 2017
  Biohaven Completes Randomization In Phase 2/3 Trial In Spinocerebellar Ataxia: Expected Topline Data Advanced To Fourth Quarter Of 2017
• Cision
  August 3, 2017
  Chondrial Announces FDA Orphan Drug Designation for CTI-1601, a Novel Investigational Technology for the Treatment of Friedreich’s Ataxia
• MIT Technology Review
  August 2, 2017
  Gene Editing Study in Human Embryos Points toward Clinical Trials
• Mi2n
  July 25, 2017
  Neurological Issue Doesn’t Stop The Music For Ian C. Bouras
• Woodburn Independent
  July 23, 2017
  Woodburn man with rare neurological disorder raising money for cure
• FOX 8 — Cleveland
  July 10, 2017
  Students with special needs shine during horse show
• Hank Stolz Show – Charter 3 TV
  July 3, 2017
  John & Dana Mauro, Laura Kurdziel, Assistant Professor at Merrimack College, and Massachusetts State Senator Michael Moore talk about the 10 year anniversary of the Walk & Roll for Ataxia
• Bridgewater Wicked Local
  July 2, 2017
  Despite obstacles, Bridgewater woman conquers Spartan race
• StreetInsider.com
  June 22, 2017
  Reata Pharma (RETA) Receives Orphan Drug Designation for Omaveloxolone for Treatment of Friedreich’s Ataxia
• Science Translational Medicine
  June 21, 2017
  Thinking About Genetics and Disease
• WPTV Channel 5
  June 20, 2017
  Living with ataxia
• YakTriNews
  June 13, 2017
  CBC wheelchair-bound graduate to walk across stage with help of Pasco Police officers
• The Davis Enterprise
  June 9, 2017
  Friedreich’s ataxia events highlight challenges, research breakthroughs
• Nasdaq
  June 1, 2017
  Four National Organizations, Hundreds of Families Impacted, Join Together to Speak with FDA about Drug Development in Friedreich’s Ataxia
• Nasdaq
  June 1, 2017
  Reata Pharmaceuticals, Inc. Announces Positive Data From Part One of Moxie Trial of Omaveloxolone for Friedreich’s Ataxia
• Biohaven Pharmaceuticals
  May 31, 2017
  BIOHAVEN COMPLETES ENROLLMENT IN SPINOCEREBELLAR ATAXIA clinical TRIAL WITH TRIGRILUZOLE
• CBS WKTV
  May 24, 2017
  Local guitar player with ataxia keeps an upbeat tempo
• Biohaven Pharmaceuticals
  May 15, 2017
  BIOHAVEN’s TRIGRILUZOLE RECEIVES FAST TRACK DESIGNATION FROM U.S. FDA
• The Signal
  May 12, 2017
  Trent Peterson rides across PCT to raise awareness for genetic disease/Ataxia
• WFLA News Channel 8
  April 30, 2017
  Local DJ aims to bring awareness to little-known disease through bowling
• The News & Observer
  April 23, 2017
  All-terrain wheelchair gets disabled sportsman back outdoors — Shaffer
• The Sunflower
  April 12, 2017
  ’There is no passion to be found in playing small’
• Psychology Today
  April 12, 2017
  A Wide Range of Mental Disorders May Have Link to Cerebellum
• National Institutes of Health
  April 12, 2017
  Gene silencing shows promise for treating two fatal neurological disorders
• CBS Philly
  April 11, 2017
  Rare Diseases In Crosshairs Of A New Philadelphia Startup
• Looping Live
  April 10, 2017
  My Neurological Disorder Doesn’t Stop Me Looping!
• The Mapleton Press
  March 29, 2017
  Ataxia impacts Mapleton woman’s ability to walk and talk
• US Financial News Today
  March 21, 2017
  Anticipating Next Album Release, Guitarist Ian C. Bouras Continues to Expand His Audience
• The Hollywood Reporter
  March 16, 2017
  ‘Bill Nye: Science Guy’: Film Review | SXSW 2017
• The North Carolina 100
  March 13, 2017
  Rare Disease Foundation Marks 60 Years
• Lompoc Record
  February 14, 2017
  Exercise helps hold a rare disease at bay for Santa Ynez man
• Genetic Engineering & Biotechnology News
  February 9, 2017
  Protein Trafficking Roadblocks Could Be Cause of Neurodegeneration
• Chondrial Therapeutics, Inc.
  February 1, 2017
  Chondrial Therapeutics Secures Up to $22.6 Million in Series A Financing and Licenses Novel Technology for the Treatment of Friedreich’s Ataxia
• VolumeOne
  January 20, 2017
  Shock to the System accepting help, resting, and slowing down are key to managing a chronic illness while raising kids
• Gulf Times
  January 18, 2017
  Research sheds new light on brain disorder
• Rare Disease Report
  January 17, 2017
  BioBlast’s Trehalose Stabilizes Spinocerebellar Ataxia Symptoms
• timesunion
  January 16, 2017
  Team Led By The Ohio State University Researchers Publish Method in JoVE Video Journal to Standardize Protocol for Testing Mitchondrial Function
• NeurologyNow
  December 2016/January 2017
  Life Lines: Support groups offer information, advice, encouragement, and community. Use these tips to find the right one for you or to start your own.
• NeurologyNow
  December 2016/January 2017
  Stem Cell Reality: Desperate patients are vulnerable to the promise of stem cell therapy–most of it unproven. Protect your health–and your wallet–with these facts.
• RareDR
  December 22, 2016
  Researchers Discover a New Genetic Disease That Causes Neurodegeneration
• RareDR
  December 21, 2016
  First Patient Enrolled in Hereditary Spinocerebellar Ataxia Pivotal Trial
• Horizon Pharma
  December 8, 2016
  Horizon Pharma plc Announces Topline Results from Phase 3 Study of ACTIMMUNE® (interferon gamma-1b) in Friedreich’s Ataxia
• University Herald
  December 6, 2016
  Mark Zuckerberg And Morgan Freeman Hosts Silicon Valley Event Honoring Life Science Scientists – Huda Yahya Zoghbi from the Baylor College of Medicine was awarded for her research on the genetic causes and biochemical mechanisms of spinocerebellar ataxia and Rett syndrome
• Today’s Topic
  December 5, 2016
  Tufts researchers uncover possible source of genetic error causing multiple diseases
• People
  December 5, 2016
  Virginia Teacher Plans Surprise Police Escort for Twins with Rare Degenerative Disease: ’My Job Is Bigger Than Teaching Standards’
• Check Orphan
  November 29, 2016
  NHNN neurologist wins top European prize
• Check Orphan
  November 21, 2016
  Local Family Wants To Educate About Deadly Rare Disease
• Newswise
  November 8, 2016
  Northwestern Medicine Scientists Use Advanced Technology to Better Understand a Devastating Neurodegenerative Disorder
• AARP
  November 2, 2016
  AARP recognizes three of the many caregivers who make a difference in someone’s life
• EurekAlert!
  November 1, 2016
  New iPS-cell model system helps develop treatments for spinocerebellar ataxia
• San Diego Magazine
  October 28, 2016
  San Diego’s Select Working Together
• Buffalo News
  October 28, 2016
  MY View: It’s best to take life one day at a time
• Capital Bay
  October 19, 2016
  Wheelchair-user left stranded by bus driver because child’s buggy was already using the designated space
• Newswise
  October 18, 2016
  Dr. Puneet Opal at Northwestern Memorial Hospital Has Discovered the Genetic Sequencing for Hereditary Ataxias, a Rare Genetic Neurological Disorder
• Globe Gazette
  October 14, 2016
  Hayden Despenas scores a touchdown to remember
• Residential Systems
  October 13, 2016
  Industry Leaders Create Custom Smart Home for Family in Need
• Public Opinion
  October 11, 2016
  Local Student hosts Ataxia fundraiser
• OC Register
  September 16, 2016
  These 3 brothers stumble with a rare genetic condition, now they’ll walk to let others know about it
• Valley News
  September 15, 2016
  Worth the Weight: North Hartland Woman Lifts to Battle Disease
• prweb
  September 13, 2016
  International Ataxia Awareness Day Shines Spotlight on Neurological Diseases
• Herald News
  September 4, 2016
  Swansea woman leads walk to raise awareness of Machado Joseph disease, other types of ataxia
• Chicago Sun Times
  August 31, 2016
  Sky to sign La Rabida Children’s Hospital patient to one-day deal
• nwfdailynews.com
  August 20, 2016
  The roles reversed: Daughters become caretaker for mom after diagnosis
• AZcentral.com
  August 17, 2016
  From riding a tricycle to a Harley to a trike
• CBC.ca
  August 15, 2016
  Airdrie girls with rare genetic disease see custom home-renovated by volunteers
• News-Medical.net
  August 11, 2016
  How is Multiple System Atrophy Diagnosed?
• NeurologyNow
  August/September 2016
  Saving Grace: For Kathleen Gingerelli, 48, a diagnosis of Friedreich’s ataxia finally explained her lifelong clumsiness.
• ELLE
  August 2, 2016
  Scientist Are Trying to Ruin Your Red Wine, All the health benefits, none of the fun
• BusinessWire
  August 2, 2016
  Agilis Biotherapeutics Announces FDA Orphan Drug Designation for the Treatment of Friedreich’s Ataxia
• Eaglenews online
  July 27, 2016
  Walk for Dave is Aug. 6
• the Namibian
  July 27, 2016
  Bravely confronting Friedreich’s ataxia
• ABC 9 Local SYR
  July 18, 2016
  A Walk for Dave Raises Ataxia Awareness
• ScienceDaily
  July 13, 2016
  New technique targets gene that causes neurodegenerative disease
• Arkcity.net
  July 10, 2016
  Bill Nye the Science Guy: Here to change the world
• Arkcity.net
  June 22, 2016
  Captain of ACPD fights rare disease
• S&A Communications
  June 22, 2016
  National Ataxia Foundation names S&A Communications as agency of record
• Market Wired
  June 21, 2016
  AID.org Helps Woman Walk for the First Time in 5 Years
• The Scripps Research Institute
  June 1, 2016
  Scripps Florida Scientists Create Compound that Erases Disease-Causing RNA Defects
• Nasdaq GlobeNewswire
  May 25, 2016
  Biohaven Announces Orphan Drug Designation Request Granted for BHV-4157
• Observer-Reporter
  May 15, 2016
  Concert to aid National Ataxia Foundation
• News Medical
  March 15, 2016
  Researchers identify new mutation responsible for spinocerebellar ataxia
• Stanford Medicine
  March 15, 2016
  Finding the right doctor and learning to live with a progressive genetic disorder — as a family
• Benzinga
  March 3, 2016
  Biohaven Announces Orphan Drug Designation Request Granted for the Treatment of Spinocerebellar Ataxia
• The Journal Gazette
  March 1, 2016
  Rare diseases lacking adequate research
• Business Wire
  February 18, 2016
  Agilis Biotherapeutics and Waisman Biomanufacturing Enter Into Exclusive Manufacturing Agreement for Friedreich’s Ataxia Gene Therapy
• UT Southwestern Medical Center
  February 16, 2016
  Scientists find potential treatment for Friedreich’s ataxia
• timesunion
  February 15, 2016
  Saratoga County families highlighted in Rare Disease Movie Night
• Press Release Rocket
  February 12, 2016
  Ian C Bouras to perform on Feb 20th to raise money, and awareness, for Ataxia
• Nature.com
  January 27, 2016
  Spinocerebellar ataxia type 21 exists in the Chinese Han population
• MedicalExpress
  January 26, 2016
  Breaking the brain’s garbage disposal: Study shows even a small problem causes big effects
• Indianapolis Business Journal
  January 13, 2016
  Indy drug firm scores multi-million-dollar help from NIH
• Medical Xpress
  January 7, 2016
  Molecular mechanism responsible for a neurodegenerative disease discovered
• Time Warner News Central NY
  December 25, 2015
  Strumming to a Different Tune, Guitarist Fights Ataxia
• The Morning Star
  December 11, 2015
  Living with ataxia and sharing awareness
• CBCnews
  December 11, 2015
  Airdrie girls with Friedreich’s ataxia get home from anonymous donor
• Neurology Today
  November 5, 2015
  Immunotherapy Leads to Improvements in Some Patients with Autoimmune Cerebellar Ataxia: Which Patients Fare Best?
• KDH Pressbox.com
  October 18, 2015
  Former Ellison quarterback Eric Christian’s battle with ataxia inspiring new generations of students
• News Medical
  October 12, 2015
  Cardiac monitoring predicts survival in patients with Friedreich ataxia
• Guitar PR
  September 28, 2015
  Guitarist Ian C. Bouras pushes aside Ataxia with new String Endorsement and Upcoming Gigs
• ABS-CBN News
  September 26, 2015
  Pinoy stars come together to help Bunny Paras’ daughter
• ABC7 Los Angeles
  September 18, 2015
  Research Offers Hope for Ataxia Patients
• University of Michigan
  September 17, 2015
  Collaborative global study aims to enhance understanding of rare motor disorder
• NIH
  September 16, 2015
  Undiagnosed Diseases Network launches online application portal
• medwireNews
  September 16, 2015
  Long-term disease progression in spinocerebellar ataxia quantified
• Nasdaq
  September 14, 2015
  BioBlast Granted Patent From USPTO for Cabaletta for the Treatment of Spinocerebellar Ataxia (SCA)
• Kennebec Journal/Morning Sentinel
  September 6, 2015
  A little understanding goes a long way
• SanTan Sun News
  September 5 – September 18, 2015
  October craft fair raises funds to fight the neurological disorder ataxia
• medwire news
  September 4, 2015
  Riluzole ‘a candidate treatment’ for cerebellar ataxia
• Sun Lakes Splash
  September 1, 2015
  Ataxia Awareness Day fundraiser – October 3
• UCSF
  August 31, 2015
  New Type of Prion May Cause, Transmit Neurodegeneration Multiple System Atrophy is Described as First New Human Prion Disease Identified in 50 Years
• Salina Journal
  August 28, 2015
  Ohio woman raising awareness of disease
• The Chaffee County Times
  August 19, 2015
  Widow raising ataxia awareness visits Buena Vista
• PR Newswire
  August 17, 2015
  Retrotope announces open enrollment for Friedreich’s ataxia clinical trial
• UF News
  August 13, 2015
  Prominent award goes to UF researcher Laura P.W. Ranum
• Tulsa World
  August 11, 2015
  Collinsville man with Friedreich’s ataxia outliving early-death predictions
• Baylor College of Medicine News
  July 31, 2015
  Zoghbi receives seven-year Javits award to advance ataxia research
• Globe Newswire
  June 29, 2015
  BioBlast Pharma Receives Orphan Drug Designation From the European Commission for Cabaletta for the Treatment of Spinocerebellar Ataxia (SCA)
• RUHR-UNIVERSITÄT BOCHUM
  June 17, 2015
  RUB-Scientists develop ataxia mouse model Investigating the origins of spinocerebellar ataxia 6 Eye blink conditioning for early diagnosis
• New England Patriots Charitable Foundation
  June 15, 2015
  John Mauro of Auburn, Mass. wins third prize of $5,000 for the National Ataxia Foundation
• observer-reporter
  June 12, 2015
  Ataxia: Little-known disorder perplexes doctors and patients
• Journal of Neuroscience
  June 10, 2015
  Spinocerebellar Ataxia Type 6 Protein Aggregates Cause Deficits in Motor Learning and Cerebellar Plasticity
• Pharmacy Choice
  June 5, 2015
  Horizon Pharma plc Initiates Phase 3 Trial of ACTIMMUNE(R) (interferon gamma-1b) for the Treatment of People With Friedreich’s Ataxia
• I4U News
  June 2, 2015
  Dylan Sutcliffe Becomes Youngest Cleveland Browns Player at 9 Years Old
• Auburn, MA Daily
  May 26, 2015
  Mauro tapped for 2015 Myra Kraft Community MVP Award
• The Acorn
  May 21, 2015
  Grandmother stays upbeat despite illness
• Gainesville.com
  May 17, 2015
  Buchholz senior overcomes rare condition to graduate
• Friedreichs Ataxia News
  May 1, 2015
  Researchers Propose Novel Mechanism for the Treatment of Friedreich’s Ataxia
• Friedreichs Ataxia News
  April 29, 2015
  Researchers Suggest New Potential Therapeutic Approach for Friedreich’s Ataxia Based on Incretin Analogs
• GuitarPR
  April 27, 2015
  Guitarist Ian C. Bouras transcends rare neurological disorder with unique musical style
• AL.com
  April 14, 2015
  No cure, no ‘great treatments’ so far for debilitating neurological condition of ataxia, say UAB doctors
• Nature MIDDLE EAST
  April 12, 2015
  Mutation behind neurodegenerative condition identified
• Horizon Pharma
  April 10, 2015
  Horizon Pharma plc Receives FDA Fast Track Designation for ACTIMMUNE(R) in the Treatment of Friedreich’s Ataxia
• AL.com
  April 8, 2015
  Pelham musician in grips of neurological disorder vows: ‘I’ll make as much music as I can while I can’
• Huffington Post
  March 31, 2015
  Watch Bodybuilder With Degenerative Disorder Master Competition With Strength, Grace
• Midwest Meetings
  March 30, 2015
  Hospitability Hero
• News Medical
  March 30, 2015
  Study finds link between neurodegenerative disorders and inflammation
• Medical Express
  March 30, 2015
  Researchers find new link between neurodegenerative diseases and abnormal immune responses
• Nasdaq GlobeNewswire
  March 30, 2015
  BioBlast Pharma Announces Positive in vivo Preclinical Proof-of-Concept Results of Its Cabaletta Platform in Spinocerebellar Ataxia Type 3 (SCA3)
• Nasdaq GlobeNewswire
  March 26, 2015
  BioBlast Pharma Announces Positive Preclinical Proof-of-Concept Results of Its Novel Mitochondrial Protein Replacement Platform in Friedreich’s Ataxia
• Arizona Bridge to Independent Living
  March 24, 2015
  BOB MICHAELS RECEIVES 2014 SPIRIT OF ABIL AWARD FOR ADVOCACY, CONTRIBUTIONS TO KEEPING INDEPENDENT LIVING PHILSOPHY STRONG
• BusinessWire
  March 24, 2015
  Catabasis Pharmaceuticals to Present at International Ataxia Research Conference
• EurekAlert!
  March 23, 2015
  Cerebellar ataxia can’t be cured, but some cases can be treated
• Molecular Neurodegeneration
  March 19, 2015
  Lazarillo-related Lipocalins confer long-term protection against type I Spinocerebellar Ataxia degeneration contributing to optimize selective autophagy
• NPR
  March 16, 2015
  A Man’s Incomplete Brain Reveals Cerebellum’s Role In Thought And Emotion
• Baylor College of Medicine News
  March 12, 2015
  Many paths to degeneration for neurons
• BioNewsTexas
  February 26, 2015
  Baylor College of Medicine Researcher Receives Funding for Ataxia Project
• CheckOrphan
  February 23, 2015
  Patient registries: the quiet revolution in rare diseases
• 7th Space Interactive
  February 16, 2015
  Repetitive finger movement performance differs among Parkinson’s disease, Progressive Supranuclear Palsy, and spinocerebellar ataxia
• EurekAlert!
  February 5, 2015
  An ‘ambulance’ for the brain
• The New York Times
  January 30, 2015
  Law Creates Special Savings Accounts for Disabled People
• Market Wired
  January 29, 2015
  Reata Enrolls First Patient in the MOXIe Study, a Phase 2/3 Study Examining RTA 408 in Friedreich’s Ataxia Patients
• Daily Mail.com
  January 8, 2015
  Girl, 11, with life-threatening illness is crowned ‘Princess Molly’ as city rallies together to make her dream come true
• News Medical
  January 5, 2015
  Neurological testing accessibility and affordability: an interview with Dr Joseph Higgins
• The Grafton Villager
  December 26, 2014
  Raising Awareness about ataxia through gingerbread
• KUSA-TV Channel 9 News
  December 21, 2014
  Colorado teen perseveres in the face of rare illness
• telegram.com
  December 20, 2014
  Auburn chef’s gingerbread castles highlight cause
• Auburn, MA Daily
  December 19, 2014
  “Frozen” Gingerbread Castle Construction Commences
• Neurology Today
  December 18, 2014
  Best Advances of 2014: Picks from the Neurology Today Editorial Advisory Board
• Journal of Clinical Investigation
  December 8, 2014
  Purkinje neuron Ca²⁺ influx reduction rescues ataxia in SCA28 model
• Auburn, MA Daily
  December 8, 2014
  Auburn Chef Building Gingerbread Castle at the Auburn Mall
• 7th Space Interactive
  December 1, 2014
  The merit of proton magnetic resonance spectroscopy in the longitudinal assessment of spinocerebellar ataxias and multiple system atrophy-cerebellar type
• Journal-News
  November 30, 2014
  Event set to raise money for rare disease
• FOX News
  November 20, 2014
  Three brothers with rare neurological disorder raise awareness about debilitating disease
• Medscape
  October 8, 2014
  Cerebellar Ataxia Diagnosis Aided by Exome Sequencing
• Market Watch
  September 30, 2014
  Reata Announces the Initiation of Phase 2 Studies Examining RTA 408 for the Treatment of Friedreich’s Ataxia and Mitochondrial Myopathies
• Auburn, MA Daily
  September 26, 2014
  Bunny Paras opens up about daughter’s rare disorder
• Auburn, MA Daily
  September 24, 2014
  Ataxia Walks and Rolls to Success
• Standard Examiner
  September 23, 2014
  Hereditary affliction plagues Ataxia sufferers
• Auburn, MA Daily
  September 19, 2014
  Mauro Talks Ataxia at AHS
• Balita
  September 12, 2014
  Families to ‘Walk n’ Roll’ on Sept. 20 for ataxia that afflicts many
• Journal of Medical Genetics
  September 2014
  A novel missence mutation in CCDC88C activates the JNK pathway and causes a dominant form of spinocerebellar ataxia
• KARE 11
  August 25, 2014
  Walk, Stroll, ’n Roll for Ataxia
• Auburn, MA Daily
  August 25, 2014
  Governor Signs Bill Establishing Ataxia Awareness Day
• BioBlast Pharma
  August 18, 2014
  BioBlast Receives Notice of Allowance from USPTO for Its Novel Fusion Protein-Based Platform for the Treatment of Friedrich’s Ataxia
• Aurora Sentinel
  August 7, 2014
  For rare medical condition, help comes on horseback for Aurora man, others
• National Society of Genetic Counselors
  August 6, 2014
  Solving the Mysteries of Undiagnosed Diseases
• NL News Now
  July 15, 2014
  Medical trip deemed a success
• NORD
  July 14, 2014
  Frontline Medical Communications and NORD Develop Partnership
• Science Codex
  June 20, 2014
  Researchers find gene critical for development of brain motor center
• Benton Evening News
  June 11, 2014
  Minnesota woman running for her father, a Benton graduate
• National Institutes of Health
  June 5, 2014
  NIH embraces bold, 12-year scientific vision for BRAIN Initiative
• NASDAQ OMX GlobeNewswire
  June 2, 2014
  REGENX Biosciences and Voyager Therapeutics Announce License Agreement
• KTIV
  May 15, 2014
  HealthBeat4: A Siouxland woman is attacking ataxia
• CIRM
  May 13, 2014
  Behind the Bench: One Student’s Mission to Fight Ataxia
• Philly.com
  May 4, 2014
  Check Up: Spreading the word about rare brain diseases
• American Academy of Neurology
  May 1, 2014
  Illinois Researcher Receives $130,000 for Ataxia Research Funded by American Brain Foundation and National Ataxia Foundation
• Hendricks Pioneer Press
  May 1, 2014
  Nuese runs for ataxia in her dad’s memory
• The Lancet Neurology
  May 2014
  Progression of early features of spinocerebellar ataxia type 2 in individuals at risk: a longitudinal study
• University College London Hospitals
  May 1, 2014
  Re-activating the Friedreich’s ataxia gene in patients: early promise for a radical treatment
• PR Newswire
  April 21, 2014
  CASIS Payloads Berthed With the International Space Station Through SpaceX Dragon Capsule
• Science Codex
  April 6, 2014
  Friedreich’s ataxia — an effective gene therapy in an animal model
• Genetic Engineering & Biotechnology News
  March 18, 2014
  Biogen Idec, Atlas Venture Pump $17M into Ataxion
• DRUG Discovery & Development
  March 17, 2014
  FDA Fast Tracks Edison’s New Friedreich’s Ataxia Drug
• Observer-reporter.com
  February 22, 2014
  West Greene senior hopes to change hearts
• Worcester News
  February 21, 2014
  Youngster will play sport again with new wheelchair
• Auburn, MA Daily
  February 4, 2014
  Auburn Chef Earns Food Network Nod
• Check Orphan
  February 4, 2014
  FDA Grants Edison Pharmaceuticals’ EPI-743 Orphan Status for Friedreich’s Ataxia
• Science Codex
  January 31, 2014
  Fruit flies reveal normal function of a gene mutated in spinocerebellar ataxia type 7
• ABC WDAY 6 News
  January 30, 2014
  Spending a day in her chair
• EMORY
  January 23, 2014
  Aging brains need ‘chaperone’ proteins
• PBR
  January 22, 2014
  BioMarin to buy Repligen’s pre-clinical compounds to treat Friedreich’s Ataxia
• Fort Mill Times
  December 31, 2013
  Agilis Biotherapeutics Completes $8 Million Financing to Develop DNA-based Therapeutics for Rare Diseases
• Bowling Green Daily News
  November 3, 2013
  CAN-DO ATTITUDE
• Yorkshire Posts
  October 10, 2013
  New test set to help patients with gluten sensitivity
• TelegramTowns
  October 3, 2013
  Ataxia Group founder prepares for Walk n’ Roll
• TelegramTowns
  October 3, 2013
  Boston taxi accommodations for handicapped appear lacking
• EyeOnFitness.com
  October 1, 2013
  Nothing Is Impossible – The Hasan Banks Story
• The Riverdale Press
  September 26, 2013
  Spreading awareness of obscure but deadly disease
• The University of Adelaide Australia
  September 18, 2013
  Shining light on neurodegenerative pathway
• Auburn, MA Daily
  September 16, 2013
  Walk Or Roll To Support Ataxia Awareness
• Central Massachusetts Convention and visitors Bureau
  September 16, 2013
  Ride for John: Annual Walk and Roll for Ataxia – Saturday, October 5th
• Amsterdam News
  September 12, 2013
  Fourteenth annual International Ataxia Awareness Day
• NBC 9 News
  September 7, 2013
  Bringing more awareness about Ataxia
• Rock Hill Herald Online
  September 4, 2013
  Discovery Shows Cerebellum Plays Important Role In Sensing Limb Position And Movement
• The New Zealand Herald
  August 3, 2013
  Gene breakthrough raises hope for young sisters
• The Pharmaceutical Research and Manufacturers of America
  July 31, 2013
  Nearly 450 Innovative Medicines in Development For Neurological Disorders (PDF)
• RXmuscle.com
  July 25, 2013
  Hasan Banks Moving Forward!
• The Sacramento Bee
  July 9, 2013
  Zoghbi to receive Dickson prize in Medicine from University of Pittsburgh
• Sanford Research
  July 8, 2013
  National Ataxia Foundation, CoRDS announce partnership
• Clinical Endocrinology News
  June 21, 2013
  Osteoporosis, osteopenia appear common in Friedreich’s ataxia
• OJornal
  June 14, 2013
  Helping raise awareness about Machado-Disease
• MedicalExpress
  June 14, 2013
  Interferon-beta aids balance and movement in mice with spinocerebellar ataxia 7
• Imperial College London
  June 9, 2013
  Vitamin B3 shows potential for neurological disease Friedreich’s ataxia
• MedicalExpress
  May 29, 2013
  A little less protein may be the answer in neurodegenerative disorders
• Eagle Star — Review
  May 22, 2013
  Walk for Dave
• Science Codex
  May 22, 2013
  A pan-European study: Signs of motor disorders can appear years before disease manifestation
• Northwestern University
  May 16, 2013
  Gene Involved in Neurodegeneration Keeps Clock Running
• UCLA News
  May 10, 2013
  UCLA stem cell researchers move toward treatment for rare genetic nerve disease
• Massachusetts General Hospital
  May 8, 2013
  Mass. General, Duke study identifies two genes that combine to cause rare syndrome
• PubMed.gov
  May 7, 2013
  Transglutaminase 6 antibodies in the diagnosis of gluten ataxia.
• TelegramTowns
  May 3, 2013
  New Subtype of Spinocerebellar Ataxia With Altered Vertical Eye Movements Mapping to Chromosome 1p32
• Health Medicine Network
  April 29, 2013
  New subtype of ataxia identified
• Jconline.com
  April 28, 2013
  Community helps raise funds for McCutcheon senior with rare disorder
• US News
  April 23, 2013
  Scientists Find Way to Turn Stem Cells Into Brain Cells
• StatesmanJournel.com
  April 19, 2013
  West Salem girl to meet Glee cast on Make-A-Wish trip
• The Graham Leader
  April 19, 2013
  Hernandez marathons to battle disease
• UofMHealth.org
  April 18, 2013
  Science surprise: Toxic protein made in unusual way may explain brain disorder, U-M team finds
• The Wall Street Journal
  April 17, 2013
  Canadian Safe Step Walk-In Tub. Co. Delivers a Life-Changing Gift In a Big Purple Box to 11-Year Old Girl with Friedreich’s Ataxia
• Medical Express
  April 1, 2013
  ‘RNA sponge’ mechanism may cause ALS/FTD neurodegeneration
• ANNALS of Neurology
  April 1, 2013
  Caffeine and adenosine A2A receptor inactivation decrease striatal neuropathology in a lentiviral-based model of machado-joseph disease
• KPLC-TV
  March 27, 2013
  Faces of Rare Disease: Friedreich’s Ataxia
• 7thSpace Interactive (press release)
  March 15, 2013
  Autosomal recessive spastic ataxia of Charlevoix Saguenay (ARSACS) …
• mLIVE
  February 16, 2013
  Gabe and Izzy live on: Nationally recognized anti-bullying advocate Gabrielle Ford gets new companion, feature in Woman’s World Magazine
• National Organization for Rare Disorders
  February 5, 2013
  Groups Announce “Move Your Way” Initiative for Rare Disease Day
• CheckOrphan
  January 24, 2013
  Eliminating Rare Diseases
• NBCNEWS.com
  January 16, 2013
  Study: Hundreds of rare disease drugs in testing
• CheckOrphan
  January 10, 2013
  The Orphan Drug Act at 30 Years: What’s Next?
• PHARMABIZ.com
  January 8, 2013
  Edison Pharma begins phase IIB trial of EPI-743 in patients with Friedreich’s Ataxia
• Social Security Administration
  January 7, 2013
  Social Security Announces New Online Services Available with a my Social Security Account