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ATAXIA IN THE NEWS
- Elbert County News
August 14, 2017
’I felt like I could do anything’ Parker man reaches new heights with adaptive climbing wall
- Reata Pharmaceuticals
August 7, 2017
FDA Confirms That Use of mFARS as Primary Endpoint in Part 2 of the MOXIe Trial Can Support Approval of Omaveloxolone in Friedreich’s Ataxia
- Business Insider
August 7, 2017
Biohaven Completes Randomization In Phase 2/3 Trial In Spinocerebellar Ataxia: Expected Topline Data Advanced To Fourth Quarter Of 2017
- Cision
August 3, 2017
Chondrial Announces FDA Orphan Drug Designation for CTI-1601, a Novel Investigational Technology for the Treatment of Friedreich’s Ataxia
- MIT Technology Review
August 2, 2017
Gene Editing Study in Human Embryos Points toward Clinical Trials
- Mi2n
July 25, 2017
Neurological Issue Doesn’t Stop The Music For Ian C. Bouras
- Woodburn Independent
July 23, 2017
Woodburn man with rare neurological disorder raising money for cure
- FOX 8 — Cleveland
July 10, 2017
Students with special needs shine during horse show
- Hank Stolz Show – Charter 3 TV
July 3, 2017
John & Dana Mauro, Laura Kurdziel, Assistant Professor at Merrimack College, and Massachusetts State Senator Michael Moore talk about the 10 year anniversary of the Walk & Roll for Ataxia
- Bridgewater Wicked Local
July 2, 2017
Despite obstacles, Bridgewater woman conquers Spartan race
- StreetInsider.com
June 22, 2017
Reata Pharma (RETA) Receives Orphan Drug Designation for Omaveloxolone for Treatment of Friedreich’s Ataxia
- Science Translational Medicine
June 21, 2017
Thinking About Genetics and Disease
- WPTV Channel 5
June 20, 2017
Living with ataxia
- YakTriNews
June 13, 2017
CBC wheelchair-bound graduate to walk across stage with help of Pasco Police officers
- The Davis Enterprise
June 9, 2017
Friedreich’s ataxia events highlight challenges, research breakthroughs
- Nasdaq
June 1, 2017
Four National Organizations, Hundreds of Families Impacted, Join Together to Speak with FDA about Drug Development in Friedreich’s Ataxia
- Nasdaq
June 1, 2017
Reata Pharmaceuticals, Inc. Announces Positive Data From Part One of Moxie Trial of Omaveloxolone for Friedreich’s Ataxia
- Biohaven Pharmaceuticals
May 31, 2017
BIOHAVEN COMPLETES ENROLLMENT IN SPINOCEREBELLAR ATAXIA clinical TRIAL WITH TRIGRILUZOLE
- CBS WKTV
May 24, 2017
Local guitar player with ataxia keeps an upbeat tempo
- Biohaven Pharmaceuticals
May 15, 2017
BIOHAVEN’s TRIGRILUZOLE RECEIVES FAST TRACK DESIGNATION FROM U.S. FDA
- The Signal
May 12, 2017
Trent Peterson rides across PCT to raise awareness for genetic disease/Ataxia
- WFLA News Channel 8
April 30, 2017
Local DJ aims to bring awareness to little-known disease through bowling
- The News & Observer
April 23, 2017
All-terrain wheelchair gets disabled sportsman back outdoors — Shaffer
- The Sunflower
April 12, 2017
’There is no passion to be found in playing small’
- Psychology Today
April 12, 2017
A Wide Range of Mental Disorders May Have Link to Cerebellum
- National Institutes of Health
April 12, 2017
Gene silencing shows promise for treating two fatal neurological disorders
- CBS Philly
April 11, 2017
Rare Diseases In Crosshairs Of A New Philadelphia Startup
- Looping Live
April 10, 2017
My Neurological Disorder Doesn’t Stop Me Looping!
- The Mapleton Press
March 29, 2017
Ataxia impacts Mapleton woman’s ability to walk and talk
- US Financial News Today
March 21, 2017
Anticipating Next Album Release, Guitarist Ian C. Bouras Continues to Expand His Audience
- The Hollywood Reporter
March 16, 2017
‘Bill Nye: Science Guy’: Film Review | SXSW 2017
- The North Carolina 100
March 13, 2017
Rare Disease Foundation Marks 60 Years
- Lompoc Record
February 14, 2017
Exercise helps hold a rare disease at bay for Santa Ynez man
- Genetic Engineering & Biotechnology News
February 9, 2017
Protein Trafficking Roadblocks Could Be Cause of Neurodegeneration
- Chondrial Therapeutics, Inc.
February 1, 2017
Chondrial Therapeutics Secures Up to $22.6 Million in Series A Financing and Licenses Novel Technology for the Treatment of Friedreich’s Ataxia
- VolumeOne
January 20, 2017
Shock to the System accepting help, resting, and slowing down are key to managing a chronic illness while raising kids
- Gulf Times
January 18, 2017
Research sheds new light on brain disorder
- Rare Disease Report
January 17, 2017
BioBlast’s Trehalose Stabilizes Spinocerebellar Ataxia Symptoms
- timesunion
January 16, 2017
Team Led By The Ohio State University Researchers Publish Method in JoVE Video Journal to Standardize Protocol for Testing Mitchondrial Function
- NeurologyNow
December 2016/January 2017
Life Lines: Support groups offer information, advice, encouragement, and community. Use these tips to find the right one for you or to start your own.
- NeurologyNow
December 2016/January 2017
Stem Cell Reality: Desperate patients are vulnerable to the promise of stem cell therapy–most of it unproven. Protect your health–and your wallet–with these facts.
- RareDR
December 22, 2016
Researchers Discover a New Genetic Disease That Causes Neurodegeneration
- RareDR
December 21, 2016
First Patient Enrolled in Hereditary Spinocerebellar Ataxia Pivotal Trial
- Horizon Pharma
December 8, 2016
Horizon Pharma plc Announces Topline Results from Phase 3 Study of ACTIMMUNE® (interferon gamma-1b) in Friedreich’s Ataxia
- University Herald
December 6, 2016
Mark Zuckerberg And Morgan Freeman Hosts Silicon Valley Event Honoring Life Science Scientists – Huda Yahya Zoghbi from the Baylor College of Medicine was awarded for her research on the genetic causes and biochemical mechanisms of spinocerebellar ataxia and Rett syndrome
- Today’s Topic
December 5, 2016
Tufts researchers uncover possible source of genetic error causing multiple diseases
- People
December 5, 2016
Virginia Teacher Plans Surprise Police Escort for Twins with Rare Degenerative Disease: ’My Job Is Bigger Than Teaching Standards’
- Check Orphan
November 29, 2016
NHNN neurologist wins top European prize
- Check Orphan
November 21, 2016
Local Family Wants To Educate About Deadly Rare Disease
- Newswise
November 8, 2016
Northwestern Medicine Scientists Use Advanced Technology to Better Understand a Devastating Neurodegenerative Disorder
- AARP
November 2, 2016
AARP recognizes three of the many caregivers who make a difference in someone’s life
- EurekAlert!
November 1, 2016
New iPS-cell model system helps develop treatments for spinocerebellar ataxia
- San Diego Magazine
October 28, 2016
San Diego’s Select Working Together
- Buffalo News
October 28, 2016
MY View: It’s best to take life one day at a time
- Capital Bay
October 19, 2016
Wheelchair-user left stranded by bus driver because child’s buggy was already using the designated space
- Newswise
October 18, 2016
Dr. Puneet Opal at Northwestern Memorial Hospital Has Discovered the Genetic Sequencing for Hereditary Ataxias, a Rare Genetic Neurological Disorder
- Globe Gazette
October 14, 2016
Hayden Despenas scores a touchdown to remember
- Residential Systems
October 13, 2016
Industry Leaders Create Custom Smart Home for Family in Need
- Public Opinion
October 11, 2016
Local Student hosts Ataxia fundraiser
- OC Register
September 16, 2016
These 3 brothers stumble with a rare genetic condition, now they’ll walk to let others know about it
- Valley News
September 15, 2016
Worth the Weight: North Hartland Woman Lifts to Battle Disease
- prweb
September 13, 2016
International Ataxia Awareness Day Shines Spotlight on Neurological Diseases
- Herald News
September 4, 2016
Swansea woman leads walk to raise awareness of Machado Joseph disease, other types of ataxia
- Chicago Sun Times
August 31, 2016
Sky to sign La Rabida Children’s Hospital patient to one-day deal
- nwfdailynews.com
August 20, 2016
The roles reversed: Daughters become caretaker for mom after diagnosis
- AZcentral.com
August 17, 2016
From riding a tricycle to a Harley to a trike
- CBC.ca
August 15, 2016
Airdrie girls with rare genetic disease see custom home-renovated by volunteers
- News-Medical.net
August 11, 2016
How is Multiple System Atrophy Diagnosed?
- NeurologyNow
August/September 2016
Saving Grace: For Kathleen Gingerelli, 48, a diagnosis of Friedreich’s ataxia finally explained her lifelong clumsiness.
- ELLE
August 2, 2016
Scientist Are Trying to Ruin Your Red Wine, All the health benefits, none of the fun
- BusinessWire
August 2, 2016
Agilis Biotherapeutics Announces FDA Orphan Drug Designation for the Treatment of Friedreich’s Ataxia
- Eaglenews online
July 27, 2016
Walk for Dave is Aug. 6
- the Namibian
July 27, 2016
Bravely confronting Friedreich’s ataxia
- ABC 9 Local SYR
July 18, 2016
A Walk for Dave Raises Ataxia Awareness
- ScienceDaily
July 13, 2016
New technique targets gene that causes neurodegenerative disease
- Arkcity.net
July 10, 2016
Bill Nye the Science Guy: Here to change the world
- Arkcity.net
June 22, 2016
Captain of ACPD fights rare disease
- S&A Communications
June 22, 2016
National Ataxia Foundation names S&A Communications as agency of record
- Market Wired
June 21, 2016
AID.org Helps Woman Walk for the First Time in 5 Years
- The Scripps Research Institute
June 1, 2016
Scripps Florida Scientists Create Compound that Erases Disease-Causing RNA Defects
- Nasdaq GlobeNewswire
May 25, 2016
Biohaven Announces Orphan Drug Designation Request Granted for BHV-4157
- Observer-Reporter
May 15, 2016
Concert to aid National Ataxia Foundation
- News Medical
March 15, 2016
Researchers identify new mutation responsible for spinocerebellar ataxia
- Stanford Medicine
March 15, 2016
Finding the right doctor and learning to live with a progressive genetic disorder — as a family
- Benzinga
March 3, 2016
Biohaven Announces Orphan Drug Designation Request Granted for the Treatment of Spinocerebellar Ataxia
- The Journal Gazette
March 1, 2016
Rare diseases lacking adequate research
- Business Wire
February 18, 2016
Agilis Biotherapeutics and Waisman Biomanufacturing Enter Into Exclusive Manufacturing Agreement for Friedreich’s Ataxia Gene Therapy
- UT Southwestern Medical Center
February 16, 2016
Scientists find potential treatment for Friedreich’s ataxia
- timesunion
February 15, 2016
Saratoga County families highlighted in Rare Disease Movie Night
- Press Release Rocket
February 12, 2016
Ian C Bouras to perform on Feb 20th to raise money, and awareness, for Ataxia
- Nature.com
January 27, 2016
Spinocerebellar ataxia type 21 exists in the Chinese Han population
- MedicalExpress
January 26, 2016
Breaking the brain’s garbage disposal: Study shows even a small problem causes big effects
- Indianapolis Business Journal
January 13, 2016
Indy drug firm scores multi-million-dollar help from NIH
- Medical Xpress
January 7, 2016
Molecular mechanism responsible for a neurodegenerative disease discovered
- Time Warner News Central NY
December 25, 2015
Strumming to a Different Tune, Guitarist Fights Ataxia
- The Morning Star
December 11, 2015
Living with ataxia and sharing awareness
- CBCnews
December 11, 2015
Airdrie girls with Friedreich’s ataxia get home from anonymous donor
- Neurology Today
November 5, 2015
Immunotherapy Leads to Improvements in Some Patients with Autoimmune Cerebellar Ataxia: Which Patients Fare Best?
- KDH Pressbox.com
October 18, 2015
Former Ellison quarterback Eric Christian’s battle with ataxia inspiring new generations of students
- News Medical
October 12, 2015
Cardiac monitoring predicts survival in patients with Friedreich ataxia
- Guitar PR
September 28, 2015
Guitarist Ian C. Bouras pushes aside Ataxia with new String Endorsement and Upcoming Gigs
- ABS-CBN News
September 26, 2015
Pinoy stars come together to help Bunny Paras’ daughter
- ABC7 Los Angeles
September 18, 2015
Research Offers Hope for Ataxia Patients
- University of Michigan
September 17, 2015
Collaborative global study aims to enhance understanding of rare motor disorder
- NIH
September 16, 2015
Undiagnosed Diseases Network launches online application portal
- medwireNews
September 16, 2015
Long-term disease progression in spinocerebellar ataxia quantified
- Nasdaq
September 14, 2015
BioBlast Granted Patent From USPTO for Cabaletta for the Treatment of Spinocerebellar Ataxia (SCA)
- Kennebec Journal/Morning Sentinel
September 6, 2015
A little understanding goes a long way
- SanTan Sun News
September 5 – September 18, 2015
October craft fair raises funds to fight the neurological disorder ataxia
- medwire news
September 4, 2015
Riluzole ‘a candidate treatment’ for cerebellar ataxia
- Sun Lakes Splash
September 1, 2015
Ataxia Awareness Day fundraiser – October 3
- UCSF
August 31, 2015
New Type of Prion May Cause, Transmit Neurodegeneration Multiple System Atrophy is Described as First New Human Prion Disease Identified in 50 Years
- Salina Journal
August 28, 2015
Ohio woman raising awareness of disease
- The Chaffee County Times
August 19, 2015
Widow raising ataxia awareness visits Buena Vista
- PR Newswire
August 17, 2015
Retrotope announces open enrollment for Friedreich’s ataxia clinical trial
- UF News
August 13, 2015
Prominent award goes to UF researcher Laura P.W. Ranum
- Tulsa World
August 11, 2015
Collinsville man with Friedreich’s ataxia outliving early-death predictions
- Baylor College of Medicine News
July 31, 2015
Zoghbi receives seven-year Javits award to advance ataxia research
- Globe Newswire
June 29, 2015
BioBlast Pharma Receives Orphan Drug Designation From the European Commission for Cabaletta for the Treatment of Spinocerebellar Ataxia (SCA)
- RUHR-UNIVERSITÄT BOCHUM
June 17, 2015
RUB-Scientists develop ataxia mouse model Investigating the origins of spinocerebellar ataxia 6 Eye blink conditioning for early diagnosis
- New England Patriots Charitable Foundation
June 15, 2015
John Mauro of Auburn, Mass. wins third prize of $5,000 for the National Ataxia Foundation
- observer-reporter
June 12, 2015
Ataxia: Little-known disorder perplexes doctors and patients
- Journal of Neuroscience
June 10, 2015
Spinocerebellar Ataxia Type 6 Protein Aggregates Cause Deficits in Motor Learning and Cerebellar Plasticity
- Pharmacy Choice
June 5, 2015
Horizon Pharma plc Initiates Phase 3 Trial of ACTIMMUNE(R) (interferon gamma-1b) for the Treatment of People With Friedreich’s Ataxia
- I4U News
June 2, 2015
Dylan Sutcliffe Becomes Youngest Cleveland Browns Player at 9 Years Old
- Auburn, MA Daily
May 26, 2015
Mauro tapped for 2015 Myra Kraft Community MVP Award
- The Acorn
May 21, 2015
Grandmother stays upbeat despite illness
- Gainesville.com
May 17, 2015
Buchholz senior overcomes rare condition to graduate
- Friedreichs Ataxia News
May 1, 2015
Researchers Propose Novel Mechanism for the Treatment of Friedreich’s Ataxia
- Friedreichs Ataxia News
April 29, 2015
Researchers Suggest New Potential Therapeutic Approach for Friedreich’s Ataxia Based on Incretin Analogs
- GuitarPR
April 27, 2015
Guitarist Ian C. Bouras transcends rare neurological disorder with unique musical style
- AL.com
April 14, 2015
No cure, no ‘great treatments’ so far for debilitating neurological condition of ataxia, say UAB doctors
- Nature MIDDLE EAST
April 12, 2015
Mutation behind neurodegenerative condition identified
- Horizon Pharma
April 10, 2015
Horizon Pharma plc Receives FDA Fast Track Designation for ACTIMMUNE(R) in the Treatment of Friedreich’s Ataxia
- AL.com
April 8, 2015
Pelham musician in grips of neurological disorder vows: ‘I’ll make as much music as I can while I can’
- Huffington Post
March 31, 2015
Watch Bodybuilder With Degenerative Disorder Master Competition With Strength, Grace
- Midwest Meetings
March 30, 2015
Hospitability Hero
- News Medical
March 30, 2015
Study finds link between neurodegenerative disorders and inflammation
- Medical Express
March 30, 2015
Researchers find new link between neurodegenerative diseases and abnormal immune responses
- Nasdaq GlobeNewswire
March 30, 2015
BioBlast Pharma Announces Positive in vivo Preclinical Proof-of-Concept Results of Its Cabaletta Platform in Spinocerebellar Ataxia Type 3 (SCA3)
- Nasdaq GlobeNewswire
March 26, 2015
BioBlast Pharma Announces Positive Preclinical Proof-of-Concept Results of Its Novel Mitochondrial Protein Replacement Platform in Friedreich’s Ataxia
- Arizona Bridge to Independent Living
March 24, 2015
BOB MICHAELS RECEIVES 2014 SPIRIT OF ABIL AWARD FOR ADVOCACY, CONTRIBUTIONS TO KEEPING INDEPENDENT LIVING PHILSOPHY STRONG
- BusinessWire
March 24, 2015
Catabasis Pharmaceuticals to Present at International Ataxia Research Conference
- EurekAlert!
March 23, 2015
Cerebellar ataxia can’t be cured, but some cases can be treated
- Molecular Neurodegeneration
March 19, 2015
Lazarillo-related Lipocalins confer long-term protection against type I Spinocerebellar Ataxia degeneration contributing to optimize selective autophagy
- NPR
March 16, 2015
A Man’s Incomplete Brain Reveals Cerebellum’s Role In Thought And Emotion
- Baylor College of Medicine News
March 12, 2015
Many paths to degeneration for neurons
- BioNewsTexas
February 26, 2015
Baylor College of Medicine Researcher Receives Funding for Ataxia Project
- CheckOrphan
February 23, 2015
Patient registries: the quiet revolution in rare diseases
- 7th Space Interactive
February 16, 2015
Repetitive finger movement performance differs among Parkinson’s disease, Progressive Supranuclear Palsy, and spinocerebellar ataxia
- EurekAlert!
February 5, 2015
An ‘ambulance’ for the brain
- The New York Times
January 30, 2015
Law Creates Special Savings Accounts for Disabled People
- Market Wired
January 29, 2015
Reata Enrolls First Patient in the MOXIe Study, a Phase 2/3 Study Examining RTA 408 in Friedreich’s Ataxia Patients
- Daily Mail.com
January 8, 2015
Girl, 11, with life-threatening illness is crowned ‘Princess Molly’ as city rallies together to make her dream come true
- News Medical
January 5, 2015
Neurological testing accessibility and affordability: an interview with Dr Joseph Higgins
- The Grafton Villager
December 26, 2014
Raising Awareness about ataxia through gingerbread
- KUSA-TV Channel 9 News
December 21, 2014
Colorado teen perseveres in the face of rare illness
- telegram.com
December 20, 2014
Auburn chef’s gingerbread castles highlight cause
- Auburn, MA Daily
December 19, 2014
“Frozen” Gingerbread Castle Construction Commences
- Neurology Today
December 18, 2014
Best Advances of 2014: Picks from the Neurology Today Editorial Advisory Board
- Journal of Clinical Investigation
December 8, 2014
Purkinje neuron Ca2+ influx reduction rescues ataxia in SCA28 model
- Auburn, MA Daily
December 8, 2014
Auburn Chef Building Gingerbread Castle at the Auburn Mall
- 7th Space Interactive
December 1, 2014
The merit of proton magnetic resonance spectroscopy in the longitudinal assessment of spinocerebellar ataxias and multiple system atrophy-cerebellar type
- Journal-News
November 30, 2014
Event set to raise money for rare disease
- FOX News
November 20, 2014
Three brothers with rare neurological disorder raise awareness about debilitating disease
- Medscape
October 8, 2014
Cerebellar Ataxia Diagnosis Aided by Exome Sequencing
- Market Watch
September 30, 2014
Reata Announces the Initiation of Phase 2 Studies Examining RTA 408 for the Treatment of Friedreich’s Ataxia and Mitochondrial Myopathies
- Auburn, MA Daily
September 26, 2014
Bunny Paras opens up about daughter’s rare disorder
- Auburn, MA Daily
September 24, 2014
Ataxia Walks and Rolls to Success
- Standard Examiner
September 23, 2014
Hereditary affliction plagues Ataxia sufferers
- Auburn, MA Daily
September 19, 2014
Mauro Talks Ataxia at AHS
- Balita
September 12, 2014
Families to ‘Walk n’ Roll’ on Sept. 20 for ataxia that afflicts many
- Journal of Medical Genetics
September 2014
A novel missence mutation in CCDC88C activates the JNK pathway and causes a dominant form of spinocerebellar ataxia
- KARE 11
August 25, 2014
Walk, Stroll, ’n Roll for Ataxia
- Auburn, MA Daily
August 25, 2014
Governor Signs Bill Establishing Ataxia Awareness Day
- BioBlast Pharma
August 18, 2014
BioBlast Receives Notice of Allowance from USPTO for Its Novel Fusion Protein-Based Platform for the Treatment of Friedrich’s Ataxia
- Aurora Sentinel
August 7, 2014
For rare medical condition, help comes on horseback for Aurora man, others
- National Society of Genetic Counselors
August 6, 2014
Solving the Mysteries of Undiagnosed Diseases
- NL News Now
July 15, 2014
Medical trip deemed a success
- NORD
July 14, 2014
Frontline Medical Communications and NORD Develop Partnership
- Science Codex
June 20, 2014
Researchers find gene critical for development of brain motor center
- Benton Evening News
June 11, 2014
Minnesota woman running for her father, a Benton graduate
- National Institutes of Health
June 5, 2014
NIH embraces bold, 12-year scientific vision for BRAIN Initiative
- NASDAQ OMX GlobeNewswire
June 2, 2014
REGENX Biosciences and Voyager Therapeutics Announce License Agreement
- KTIV
May 15, 2014
HealthBeat4: A Siouxland woman is attacking ataxia
- CIRM
May 13, 2014
Behind the Bench: One Student’s Mission to Fight Ataxia
- Philly.com
May 4, 2014
Check Up: Spreading the word about rare brain diseases
- American Academy of Neurology
May 1, 2014
Illinois Researcher Receives $130,000 for Ataxia Research Funded by American Brain Foundation and National Ataxia Foundation
- Hendricks Pioneer Press
May 1, 2014
Nuese runs for ataxia in her dad’s memory
- The Lancet Neurology
May 2014
Progression of early features of spinocerebellar ataxia type 2 in individuals at risk: a longitudinal study
- University College London Hospitals
May 1, 2014
Re-activating the Friedreich’s ataxia gene in patients: early promise for a radical treatment
- PR Newswire
April 21, 2014
CASIS Payloads Berthed With the International Space Station Through SpaceX Dragon Capsule
- Science Codex
April 6, 2014
Friedreich’s ataxia — an effective gene therapy in an animal model
- Genetic Engineering & Biotechnology News
March 18, 2014
Biogen Idec, Atlas Venture Pump $17M into Ataxion
- DRUG Discovery & Development
March 17, 2014
FDA Fast Tracks Edison’s New Friedreich’s Ataxia Drug
- Observer-reporter.com
February 22, 2014
West Greene senior hopes to change hearts
- Worcester News
February 21, 2014
Youngster will play sport again with new wheelchair
- Auburn, MA Daily
February 4, 2014
Auburn Chef Earns Food Network Nod
- Check Orphan
February 4, 2014
FDA Grants Edison Pharmaceuticals’ EPI-743 Orphan Status for Friedreich’s Ataxia
- Science Codex
January 31, 2014
Fruit flies reveal normal function of a gene mutated in spinocerebellar ataxia type 7
- ABC WDAY 6 News
January 30, 2014
Spending a day in her chair
- EMORY
January 23, 2014
Aging brains need ‘chaperone’ proteins
- PBR
January 22, 2014
BioMarin to buy Repligen’s pre-clinical compounds to treat Friedreich’s Ataxia
- Fort Mill Times
December 31, 2013
Agilis Biotherapeutics Completes $8 Million Financing to Develop DNA-based Therapeutics for Rare Diseases
- Bowling Green Daily News
November 3, 2013
CAN-DO ATTITUDE
- Yorkshire Posts
October 10, 2013
New test set to help patients with gluten sensitivity
- TelegramTowns
October 3, 2013
Ataxia Group founder prepares for Walk n’ Roll
- TelegramTowns
October 3, 2013
Boston taxi accommodations for handicapped appear lacking
- EyeOnFitness.com
October 1, 2013
Nothing Is Impossible – The Hasan Banks Story
- The Riverdale Press
September 26, 2013
Spreading awareness of obscure but deadly disease
- The University of Adelaide Australia
September 18, 2013
Shining light on neurodegenerative pathway
- Auburn, MA Daily
September 16, 2013
Walk Or Roll To Support Ataxia Awareness
- Central Massachusetts Convention and visitors Bureau
September 16, 2013
Ride for John: Annual Walk and Roll for Ataxia – Saturday, October 5th
- Amsterdam News
September 12, 2013
Fourteenth annual International Ataxia Awareness Day
- NBC 9 News
September 7, 2013
Bringing more awareness about Ataxia
- Rock Hill Herald Online
September 4, 2013
Discovery Shows Cerebellum Plays Important Role In Sensing Limb Position And Movement
- The New Zealand Herald
August 3, 2013
Gene breakthrough raises hope for young sisters
- The Pharmaceutical Research and Manufacturers of America
July 31, 2013
Nearly 450 Innovative Medicines in Development For Neurological Disorders (PDF)
- RXmuscle.com
July 25, 2013
Hasan Banks Moving Forward!
- The Sacramento Bee
July 9, 2013
Zoghbi to receive Dickson prize in Medicine from University of Pittsburgh
- Sanford Research
July 8, 2013
National Ataxia Foundation, CoRDS announce partnership
- Clinical Endocrinology News
June 21, 2013
Osteoporosis, osteopenia appear common in Friedreich’s ataxia
- OJornal
June 14, 2013
Helping raise awareness about Machado-Disease
- MedicalExpress
June 14, 2013
Interferon-beta aids balance and movement in mice with spinocerebellar ataxia 7
- Imperial College London
June 9, 2013
Vitamin B3 shows potential for neurological disease Friedreich’s ataxia
- MedicalExpress
May 29, 2013
A little less protein may be the answer in neurodegenerative disorders
- Eagle Star — Review
May 22, 2013
Walk for Dave
- Science Codex
May 22, 2013
A pan-European study: Signs of motor disorders can appear years before disease manifestation
- Northwestern University
May 16, 2013
Gene Involved in Neurodegeneration Keeps Clock Running
- UCLA News
May 10, 2013
UCLA stem cell researchers move toward treatment for rare genetic nerve disease
- Massachusetts General Hospital
May 8, 2013
Mass. General, Duke study identifies two genes that combine to cause rare syndrome
- PubMed.gov
May 7, 2013
Transglutaminase 6 antibodies in the diagnosis of gluten ataxia.
- TelegramTowns
May 3, 2013
New Subtype of Spinocerebellar Ataxia With Altered Vertical Eye Movements Mapping to Chromosome 1p32
- Health Medicine Network
April 29, 2013
New subtype of ataxia identified
- Jconline.com
April 28, 2013
Community helps raise funds for McCutcheon senior with rare disorder
- US News
April 23, 2013
Scientists Find Way to Turn Stem Cells Into Brain Cells
- StatesmanJournel.com
April 19, 2013
West Salem girl to meet Glee cast on Make-A-Wish trip
- The Graham Leader
April 19, 2013
Hernandez marathons to battle disease
- UofMHealth.org
April 18, 2013
Science surprise: Toxic protein made in unusual way may explain brain disorder, U-M team finds
- The Wall Street Journal
April 17, 2013
Canadian Safe Step Walk-In Tub. Co. Delivers a Life-Changing Gift In a Big Purple Box to 11-Year Old Girl with Friedreich’s Ataxia
- Medical Express
April 1, 2013
‘RNA sponge’ mechanism may cause ALS/FTD neurodegeneration
- ANNALS of Neurology
April 1, 2013
Caffeine and adenosine A2A receptor inactivation decrease striatal neuropathology in a lentiviral-based model of machado-joseph disease
- KPLC-TV
March 27, 2013
Faces of Rare Disease: Friedreich’s Ataxia
- 7thSpace Interactive (press release)
March 15, 2013
Autosomal recessive spastic ataxia of Charlevoix Saguenay (ARSACS) …
- mLIVE
February 16, 2013
Gabe and Izzy live on: Nationally recognized anti-bullying advocate Gabrielle Ford gets new companion, feature in Woman’s World Magazine
- National Organization for Rare Disorders
February 5, 2013
Groups Announce “Move Your Way” Initiative for Rare Disease Day
- CheckOrphan
January 24, 2013
Eliminating Rare Diseases
- NBCNEWS.com
January 16, 2013
Study: Hundreds of rare disease drugs in testing
- CheckOrphan
January 10, 2013
The Orphan Drug Act at 30 Years: What’s Next?
- PHARMABIZ.com
January 8, 2013
Edison Pharma begins phase IIB trial of EPI-743 in patients with Friedreich’s Ataxia
- Social Security Administration
January 7, 2013
Social Security Announces New Online Services Available with a my Social Security Account

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