NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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PACIFIC TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
** Meeting Schedule Change Alert **
For June, we have special guest speaker who is not available for our usual Sunday meeting. Because this guest is a practicing physician, we felt it was appropriate to adjust our schedule for him.
Please join us on TUESDAY, June 10th at 1:00 PM PST, for our monthly virtual monthly support group meeting. We welcome Dr. Scott Barbuto, MD, PhD, a physiatrist and researcher at New York-Presbyterian/Columbia University Medical Center. He has published a number of studies linking aerobic exercise to improvements in ataxian cerebellar function. A special thanks to Danielle Beshara for participating in Dr. Barbuto’s study and making this all possible! This should be a great presentation, but if you are not able to make it at this new date, rest assured that it will be recorded and posted on our AALV Facebook page. Hope to see you there.
Quick Link:
https://us06web.zoom.us/j/4170430
Contact Information
Howard Silverman at Phone #: 702-290-6724 | Email: Silverman3@cox.net
or Don Fey at Email: feydw@aol.com
or Daniel Gavern at Email: dkgavern@gmail.com
Join our Facebook Group: https://www.facebook.com/groups/2090650814550409/?hc_location=group