NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Our next Central PA Support Group Meeting will be on July 20th from 11am to 1pm. After the meeting we will head over to the Leader Farm for our annual family picnic. Please bring a side dish or dessert to share. Hamburgers, hot dogs and drinks will be provided. Please RSVP by July 16th so I can let Mike and Karen know how many to expect.
Meeting Location: Penn State Hershey Medical Center – 30 Hope Drive Location
Picnic Location: Leader Family Farm
Contact Information
For meeting access information contact Michael Cammer at Phone #: 610-996-5814 | Email: michael.cammer62@hotmail.com
Join Our Facebook Group: https://www.facebook.com/groups/1475283086068548/
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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