NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
This meeting we will be joined by Celeste Stuart the Patient Engagement Manager at NAF who has a PHD in biochemistry and 2 Researchers from Northwestern Hospital Movement Disorders Center, Molly Ann Flynn and Karen Williams who will be discussing several research opportunities for ataxia patients.
Contact the Support Group Leader for Zoom access
Contact Information
For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com
or Suzanne Martin at E-Mail: martin.suzannedt@gmail.com
Join our Facebook Group: www.facebook.com/groups/399822342699486
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
