NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
We will meet August 25th at 1:30pm for lunch at the Winking Lizard in Independence.
The address is 6111 Quarry Ln, Independence, OH 44131
They say they are handicap accessible and they do not take reservations. I’ll need an accurate head count closer to the event so that I can get there early and get us all a table.
Julie Clarich
Phone #: 440-666-6078
Email: julieplus3@gmail.com
Mike Hammer
Email: mikey.hammer@gmail.com
Facebook Group: https://www.facebook.com/groups/157330301877408/
Blog: http://ataxiafoundationcleveland.blogspot.com/
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
