NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information:
We’re looking forward to our annual picnic and enjoying fellowship with friends and special guests from NAF Lori Shogren and Kari Brooks!
The support group will provide grilled hot dogs and hamburgers.
Please bring side dishes and desserts to share and your drink of choice.
There is a $5 per vehicle fee to enter the park.
Meeting Location:
Lanier Park at Lake Lanier
1360 Buford Dam Rd
Buford, GA 30518
Contact Information
For more information contact:
Derringer Kuriatnyk, E-mail: Dnkuriatnyk@gmail.com or Christy Kuriatnyk, E-mail: ckuriatnyk@gmail.com
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Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
