NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information: ELIZABETH FOSS, OTR/L; LITTLE STEPS / BIG GAINS Video: “Let’s Talk Ataxia” followed by a Q & A Session The 30-Day Tai-Chi Inspired Sitting Balance Challenge!
Meeting Location:
https://us06web.zoom.us/j/88042835588?pwd=UzMbrgcxUqQLAlLFQrEqUjilmAGaSl.1
Meeting ID: 880 4283 5588
Passcode: 419579
Contact Information
For more information contact:
Derringer Kuriatnyk, E-mail: Dnkuriatnyk@gmail.com or Christy Kuriatnyk, E-mail: ckuriatnyk@gmail.com
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