NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
The Johns Hopkins Ataxia Center is excited to announce our annual Ataxia Adaptive Sailing Day, which is scheduled for Saturday, June 14, 2024 from 10 a.m. to 12 p.m. (weather permitting).
Space is limited to a maximum of 35 people, and you must register to attend.
· Click Here to register, the passcode needed to register is “SAILFREE” (case sensitive)
· Click Here to view the flyer
For those who are interested, there will be a social lunch gathering at Little Havana restaurant at 12:30 pm. More details to come.
We hope you can join in on the fun!
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