NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
PACIFIC TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
https://us04web.zoom.us/j/5367570101?pwd=d0EwT1B1aE1teFlwZDhKOXNmVWF4UT09&omn=78730463622
Meeting ID: 536 757 0101
Passcode: 059192
Contact Information
Libby and Rich Hoops
Email: hoops.e.a.hoops@gmail.com
Facebook Group: https://www.facebook.com/groups/755383154876534/