NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
EASTERN TIME ZONE
***Please note: This event is not hosted by or affiliated with NAF. It is offered by our partner, SCA27b Foundation. They requested to publish the information on our event calendar.***
SCA27B Zoom Support group meeting
July 27, 11-12:30 EDT (Canada/US)
Hosted by SCA27b Ataxia Foundation
Mediated by Mary Hogan, director
Please contact Mary at sca27b@gmail.com for the Zoom link
Our foundation is a 501(c)(3) nonprofit organization devoted to the advocacy of patients with spinocerebellar ataxia type-27B (SCA27B).
Mission: Our mission is to improve the lives of individuals and families affected by SCA27B while promoting research and treatments for ataxia.
Learn More: sca27b.org
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
