NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
CENTRAL TIME
We meet at 10:30AM-12:30PM on the 2nd Saturday of every month.
Zoom information to follow.
For meeting access information or to be added to the mailing list for this group please contact:
Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com
For more information, see our Facebook Group!
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