Supercharge your independence Think you’ve hit the peak of your abilities? Think again. Abilities live events and online resources deliver game-changing technologies, products, services and education to help our dynamic

Rare Across America is the opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare

Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 17th! Advocates will have

International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this

Rare Diseases & Orphan Products Breakthrough Summit: From Voices to Breakthroughs Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough

The Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand

Undiagnosed Rare Disease Day is celebrated on several different days around the world but every day is undiagnosed for the families living in the world of the unknown. Rare &