Advocacy
Events
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FDA Rare Disease Day 2026
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. This is
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Rare Disease Week on Capitol Hill
Capitol Hill Washington, DC, DC, United StatesThe Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand
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Rare Disease Day at NIH
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease
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Rare Disease Day
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease
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Undiagnosed Rare Disease Day
VirtualUndiagnosed Rare Disease Day is celebrated on several different days around the world but every day is undiagnosed for the families living in the world of the unknown. Rare &
FREE
