Advocacy
Events
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2024 IAAD
Not ApplicableInternational Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations
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Houston Abilities Expo
Supercharge your independence Think you’ve hit the peak of your abilities? Think again. Abilities live events and online resources deliver game-changing technologies, products, services and education to help our dynamic disability community break barriers and push past limits. Learn More: www.abilities.com/houston
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Rare Across America
VirtualRare Across America is the opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare
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United Against Ataxia Hill Day
VirtualJoin NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 17th! Advocates will have the opportunity to attend virtual meetings with members of congress and their staffers to tell their stories and relay the importance of supporting NAF’s legislative
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International Ataxia Awareness Day
VirtualInternational Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations
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NORD Rare Diseases Summit
Rare Diseases & Orphan Products Breakthrough Summit: From Voices to Breakthroughs Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.® Together, we can advance innovation for the more than 30 million Americans – and more than 400 million people worldwide – with rare diseases!