Virtual
Calendar of Events
M Mon
T Tue
W Wed
T Thu
F Fri
S Sat
S Sun
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Show and Tell Host:
0 events,
0 events,
1 event,
PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
CENTRAL TIME ZONE Thinking about joining a clinical trial but unsure what it really involves? The Weill Cornell Medicine Department of Genetic Medicine team will take you behind the scenes and give you an inside look at the research participant experience, with a focus on their Friedreich’s Ataxia (FA) gene therapy trial. Their expert coordinator
5 events,
Chicago Support Group Meeting
Chicago Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Contact the Support Group Leader
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led
All About Acute Cerebellar Ataxia
All About Acute Cerebellar Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at Acute Cerebellar Ataxia, including the typical diagnostic journey for those affected, what to expect
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
0 events,
0 events,
3 events,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Boston Support Group Meeting
Boston Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
55+ (Just Us Ataxians) Support Group Meeting
55+ (Just Us Ataxians) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion
2 events,
What Does That Mean? A Crash Course in Ataxia Diagnosis Lingo
What Does That Mean? A Crash Course in Ataxia Diagnosis Lingo
CENTRAL TIME ZONE Have you ever had questions about the terms used to describe different types of ataxia? Are you confused about what kind of ataxia you have based on
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
5 events,
North Carolina Triangle Support Group
North Carolina Triangle Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
Colorado Support Group Meeting
Colorado Support Group Meeting
MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://cuboulder.zoom.us/my/allisonhilger Contact Information Allison
Cooking with Troy
Cooking with Troy
CENTRAL TIME ZONE Join us for Cooking with Troy, a fun and inclusive webinar series led by Chef Troy Stewart, a professional chef living with Gluten Ataxia. Whether you're a beginner or a seasoned home cook, these sessions are designed to help people of all ability levels feel more confident and independent in the kitchen.
Global Support Group (Hope for Ataxia) Meeting- 1st Session
Global Support Group (Hope for Ataxia) Meeting- 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) Meeting- 2nd Session
Global Support Group (Hope for Ataxia) Meeting- 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
4 events,
Greater Jax Area Support Group Meeting
Greater Jax Area Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Discovery Village at Deerwood
Spanish Speaking Ataxia Support Group
Spanish Speaking Ataxia Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is the Spanish
Ataxia Alliance of Northwest Florida
Ataxia Alliance of Northwest Florida
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet the first Saturday of
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Location: Zoom https://us06web.zoom.us/j/7647744197?pwd=LKJZxmfQYLHMkREiIbKBzIHdeFSpm3.1&omn=89563619942 Meeting ID: 764 774 4197
0 events,
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Any Topic Host: Linda
2 events,
Johns Hopkins Support Group Meeting
Johns Hopkins Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact
Ataxia Awareness Las Vegas Support Group Meeting
Ataxia Awareness Las Vegas Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information ** Meeting Schedule Change Alert
2 events,
Ask the Ataxia Expert
Ask the Ataxia Expert
CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H9csqjGUQ4SqEbuiL83gfw Please do not submit questions
Northwest Washington Yeitis Support Group
Northwest Washington Yeitis Support Group
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/mos-mrcr-eyw Topic:
4 events,
All About Gluten Ataxia
All About Gluten Ataxia
CENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of Gluten Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by
Western Michigan Support Group Meeting
Western Michigan Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information; Join Zoom Meeting https://us06web.zoom.us/j/85003567488?pwd=0QCaKjfMmnSAnaKFx5omrX6EdEvo73.1 Meeting
Thrive Together on Thursdays
Thrive Together on Thursdays
Goal: To provide ataxia patients with a sense of community, education, information and resources that will help individuals positively self-manage their condition and optimize quality of life Thursday, June 12 @ 3:00 pm (EST) "Let's Play Jeopardy" Register HERE to attend and play virtual jeopardy" This is a fun virtual game activity that is meant to build community
The Dakotas Support Group
The Dakotas Support Group
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome those anywhere from
3 events,
Philadelphia Support Group Meeting
Philadelphia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
6 events,
Los Angeles Support Group Meeting
Los Angeles Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information one hour meeting covering June
St. Louis Support Group Meeting
St. Louis Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
North Texas Support Group Meeting
North Texas Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us06web.zoom.us/j/82397928853?pwd=wQGFiMeYWTHnSlvIaBr6JuQaJR3arU.1
Treasure Coast Support Group
Treasure Coast Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
Wisconsin Ataxia Warriors Support Group Meeting
Wisconsin Ataxia Warriors Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information There will be a speaker
Kansas City Support Group Meeting
Kansas City Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
0 events,
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
0 events,
5 events,
Parents With Ataxia Support Group Meeting
Parents With Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Western NY Support Group Meeting
Western NY Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion
Parents of Kids with Ataxia Support Group
Parents of Kids with Ataxia Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion
Canada Support Group Meeting
Canada Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
2 events,
Richmond Support Group Meeting
Richmond Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Finger Lakes Support Group
Finger Lakes Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
4 events,
Connecticut Support Group Meeting
Connecticut Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Western Washington Support Group Meeting
Western Washington Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Information Coming Soon Contact
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
1 event,
African Americans with Ataxia Support Group Meeting
African Americans with Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact
1 event,
Central Ohio Support Group Meeting
Central Ohio Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Old Worthington Library
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Sleep Habits Host: Group
1 event,
All About SCAR20
All About SCAR20
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Autosomal Recessive Spinocerebellar Ataxia type 20 (SCAR20)*, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. *This webinar is about Autosomal
0 events,
2 events,
Visual Symptoms & Treatments for Ataxia
Visual Symptoms & Treatments for Ataxia
CENTRAL TIME ZONE This webinar will discuss visual symptoms associated with Ataxia. This includes double vision and other symptoms associated with eye movement abnormalities, which occur in Cerebellar Ataxia of any cause, as well as some discussion of retinal and optic nerve disease, which may occur in some specific genetic causes of Ataxia. Register: Click here.
Lower Michigan Support Group
Lower Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
4 events,
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862
Chicago Support Group Meeting
Chicago Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Contact the Support Group Leader
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
0 events,
0 events,
3 events,
Ataxia Recourses and Discussion Support Group
Ataxia Recourses and Discussion Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Adaptive recreation Host: Group
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Adaptive Recreation Host: Group
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: Join Zoom Meeting
1 event,
Coffee Chat for Parents of School-Aged Kids with Ataxia
Coffee Chat for Parents of School-Aged Kids with Ataxia
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
