Webinar
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CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Ataxia with Oculomotor Apraxia (AOA1, AOA2, and AOA4), the
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CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Maimuna Sali Paul will present the research, "Molecular and cellular mechanisms in EBF3-related cerebellar ataxias and neurodevelopmental disorders." Register: Click here. Research Lay Summary: Ataxia is a common neurological condition in which a person has impaired
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CENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey. Register: Click here. About the Care
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CENTRAL TIME ZONE (Le français suit l'anglais) Have you ever wondered what it is like to participate in an ataxia natural history study? This type of research study collects data about how specific types of ataxia progress over time. Come learn about the CRC-SCA Natural History Study in Canada! This panel will feature a current
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CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 12 (SCA12), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Russell Margolis,
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