Webinar

CENTRAL TIME ZONE NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, they elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community. Join us to learn how NORD can work with the

CENTRAL TIME ZONE In this session, we will learn what gene therapy is, the different types of gene therapy, and how gene therapy could be used to treat Ataxia in the future. We will also discuss the limitations of gene therapy technology, as well as what research is being done right now on gene therapy

CENTRAL TIME ZONE Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn

CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at deep brain stimulation and Ataxia. We will cover: What is DBS? How can DBS be used to treat Ataxia? What are the limitations or concerns about DBS? What research is being done right now on DBS? Register: Click here. Other

CENTRAL TIME ZONE Join us as we share everyday products for accessible living that have been picked and reviewed by individuals with disabilities. Find out what factors they considered and

CENTRAL TIME ZONE Do you or a loved one have a FXTAS? Our expert will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of

CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spastic Paraplegia Type 7, the typical diagnostic journey for