Webinar
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All about X-Linked Cerebellar Ataxia (XLCA)
Zoom WebinarCENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of X-Linked Cerebellar Ataxia (XLCA), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into these diseases. XLCA includes several different conditions, such as X-linked
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Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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Chair Yoga for Ataxia
Zoom WebinarCENTRAL TIME For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs - no
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Research and Treatment Development for SCA10
Zoom WebinarCENTRAL TIME ZONE Do you or a loved one have a SCA10? Our expert will teach us how Spinocerebellar Ataxia type 10 (SCA10) is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts.
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All About SCA10
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA10, the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
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Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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All About Ataxia Caused by Traumatic Brain Injury
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by traumatic brain injury, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry
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All About Troriluzole
Zoom WebinarCENTRAL TIME ZONE We have received lots of questions from our community about Troriluzole, an investigational therapy for SCA. In this session, we will go over some of the most common questions we have received about Troriluzole. Then there will be an open Q&A session for attendees to ask their own questions. Troriluzole is an
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How to Survive a Hospital Stay with Ataxia: Good Things to Know
Zoom WebinarCENTRAL TIME ZONE Nobody likes a hospital stay. Our expert, a neuroscience nurse, will break down the essentials of emergency, acute, and rehab care, and discuss practical tips for preparing for hospitalization. Learn how to communicate effectively with your caregivers and navigate transitions to home or rehab. Plus, we'll touch on the basics of billing
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Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
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