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Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Share Your Story. Strengthen Our Voice.

Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.

Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF BLOG

Recent Articles

PrepRARE

All about PDUFA Dates

Drug companies must follow a detailed process to build and submit their New Drug Application (NDA) to the U.S. Food and Drug Administration (FDA). You Read More…

Recent Member Stories

Sandra B

I’m Sandra. I’m 50 years old and based in Hamburg, Germany. There are some things I found out and experienced, and for I found them Read More…

CoCo Tsoi

My name is CoCo from Hong Kong, and I am an adaptive golfer currently ranked under the World Ranking for Golfers with Disability (WR4GD). I Read More…

Big Bill

On October 21,2024 my life changed forever because my diagnosis of Ataxia. The neurologist said I had two options to go to Rochester Mayo or Read More…

David M

The first sign something was not right was in 2012, when I found I could not carry a cup of coffee across an open space Read More…

WHAT IS ATAXIA?

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EVENTS

Oct 17, 2025 12:00 am - 11:59 pm
Xtreme Hike 2025: Rim to Rim

NAF is committed to supporting those affected by Ataxia. This year, we’re taking our mission to new heights with the NAF Xtreme Hike! This trek will take us through one Read More…

Oct 17, 2025 11:30 am - 12:30 pm
Connecticut Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Oct 17, 2025 03:00 pm - 05:00 pm
Global Support Group (Hope for Ataxia) 1st Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Oct 17, 2025 06:00 pm - 08:00 pm
Global Support Group (Hope for Ataxia) 2nd Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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