Cynthia Thibodeaux

I spent 10 yrs with a Dr who thought I had MS. After a visit to Mayo clinic in MN, I was told no MS, probable CANVAS. I was put on long term disability from my job as soon as I started walking with a bad gait. In the refinery business, I was a fall risk. I was 52 and not ready to retire. Now, at 67, I fall easily and speechless is very slurred. I have had the chronic cough since I was 30, but never thought it was this. My family is very supportive and I am now a positive CANVAS. It is affecting my lungs by causing CO2 build up. I have gastroparisis, slow digestive gut, and pelvic floor dysfunction. My sensory neuropathy started at my feet and now is up to my face, but is affecting my large nerves in my legs. Lots of foot pain in evening and restless legs. I had a Subdural hematoma on the right side of my brain last November and the only symptoms I had was falling and not being able to get up. Never hit my head. But what makes it all worse, in 2020 3 back surgeries in one month and the pain is still here in my lower back. My worse nightmare so far is my husband won’t let me drive. I have had no wrecks, but I was told I weave on the road. Sucks! I work everyday at a non-profit organization helping that keeps me going. And 7 wonderful grandchildren.