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The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Share Your Story. Strengthen Our Voice.

Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.

Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF Blog

Recent Articles

Recent Member Stories

Brian G

Back in October of 2024 I was managing a hotel restaurant and came down 2 steps and just kept going without the ability to stop. Read More…

Marina Parker

Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had Read More…

Freyglee Borges

I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I Read More…

What Is Ataxia?

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EVENTS

Jan 15, 2026 12:00 pm - 01:00 pm
Richmond Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Jan 16, 2026 10:00 am - 11:00 am
Ataxia Research Explained: C. elegans Models

CENTRAL TIME ZONE Most people haven’t heard of Caenorhabditis elegans. But these tiny worms are research powerhouses! In this session, we will discuss what information C. elegans can tell us Read More…

Jan 16, 2026 11:30 am - 12:30 pm
Connecticut Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Jan 16, 2026 03:00 pm - 05:00 pm
Global (Hope for Ataxia) Support Group Meeting- 1st Session

Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…

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