NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Submitted by Shannon Dunphy Lazo Happy Holidays, everyone! We’re glad you were able to join us on Saturday. As people arrived, they were greeted, serving as a mini-introduction. To those Read More…
Virtual support group meetings will continue on through the winter months. Read the latest support group meeting recaps here. Find an upcoming meeting to join at www.ataxia.org/events. Treasure Coast Ataxia Support Read More…
Ataxia support groups continued to meet virtually during the pandemic. Find upcoming support group meetings at www.ataxia.org/events. Feel free to join a group outside of your area/state! Here are the most Read More…
My name is Amanda Simmons and I was diagnosed with SCA6 in 2018 just after my 45th birthday. I inherited from my father. I am the youngest of five children Read More…
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