Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now. LEARN MORE!
Guest Author: Cherry McLoughlin, Western Washington Ataxia Support Group Co-Leader How many of us have taken the time to put our stories to paper? Probably not very many. Yet, how many of us have a story to tell? All of us. Our stories can be about our Ataxia journey, life Read More…
Author: Sherry McLaughlin, NAF Support Group Leader What do you do when you or a loved one has been diagnosed with a Rare Disease? You search for a physician who is knowledgeable, and you seek out others with the same condition. This is exactly why the Pacific Northwest Rare Disease Read More…
Virtual support group meetings will continue on through the spring months with several groups around the nation beginning to host in-person meetings and events. Read the latest support group meeting recaps here. Find an upcoming meeting to join at www.ataxia.org/events. Greater Atlanta Ataxia Support Group Meeting Recap – March 5th Submitted Read More…
Submitted by Shannon Dunphy Lazo Happy Holidays, everyone! We’re glad you were able to join us on Saturday. As people arrived, they were greeted, serving as a mini-introduction. To those who were not able to attend: remember that Zoom is an excellent way to attend without having to worry about Read More…
Virtual support group meetings will continue on through the winter months. Read the latest support group meeting recaps here. Find an upcoming meeting to join at www.ataxia.org/events. Treasure Coast Ataxia Support Group Meeting Recap – December 5th Submitted by Kathi Yule As people were checking into our zoom meeting on Saturday, Read More…
Ataxia support groups continued to meet virtually during the pandemic. Find upcoming support group meetings at www.ataxia.org/events. Feel free to join a group outside of your area/state! Here are the most recent recaps. Treasure Coast Ataxia Support Group Meeting Recap – September 12 Submitted by Kathi Yule Our guest speaker was Read More…
Guest Author: Jay Armstrong, NAF Support Group Leader At my 7 year olds son’s first baseball practice the coach asked if a parent would be willing to help with a pop-up drill. It was mid-day. Hot. And most of the parents were tucked deep in the shade. The coach, a Read More…
As the summer gets going, many of our Support Groups have been meeting virtually to stay connected. Check our events calendar for upcoming virtual meetings. Below are recaps about some recent Support Group meetings. Treasure Coast Ataxia Support Group Meeting – June 6th Submitted by Kathi Yule Lisa Cole opened our Read More…
COVID-19 is affecting many areas of life. While our Support Groups haven’t been able to meet in person because of Stay At Home orders across the country, many have gone virtual. Check our events calendar for upcoming virtual meetings. Below are recaps about some recent Support Group meetings. Greater Atlanta Read More…
Author: Amy Draves Upon learning that I (Amy) for sure had Ataxia of some kind, I joined the Facebook page of the National Ataxia Foundation. Connecting with people who knew so much more than I did was important to me. On a post by Teressa Cocarro, I saw she was Read More…
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