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Support Group News

St. Louis Ataxia Support Group Recap – 12.12.20

Submitted by Shannon Dunphy Lazo   Happy Holidays, everyone! We’re glad you were able to join us on Saturday. As people arrived, they were greeted, serving as a mini-introduction.  To those who were not able to attend: remember that Zoom is an excellent way to attend without having to worry Read More…

National Ataxia Foundation

Winter 2020 Support Group Recaps

Virtual support group meetings will continue on through the winter months. Read the latest support group meeting recaps here. Find an upcoming meeting to join at www.ataxia.org/events. Treasure Coast Ataxia Support Group Meeting Recap – December 5th Submitted by Kathi Yule As people were checking into our zoom meeting on Saturday, Read More…

National Ataxia Foundation

Fall 2020 Support Group Meeting Updates

Ataxia support groups continued to meet virtually during the pandemic. Find upcoming support group meetings at www.ataxia.org/events. Feel free to join a group outside of your area/state! Here are the most recent recaps. Treasure Coast Ataxia Support Group Meeting Recap – September 12 Submitted by Kathi Yule Our guest speaker was Read More…

Why I Founded the Philadelphia Ataxia Support Group

Guest Author: Jay Armstrong, NAF Support Group Leader At my 7 year olds son’s first baseball practice the coach asked if a parent would be willing to help with a pop-up drill.  It was mid-day. Hot. And most of the parents were tucked deep in the shade. The coach, a Read More…

Summer 2020 Virtual Support Group Meeting Recaps

As the summer gets going, many of our Support Groups have been meeting virtually to stay connected. Check our events calendar for upcoming virtual meetings. Below are recaps about some recent Support Group meetings. Treasure Coast Ataxia Support Group Meeting – June 6th Submitted by Kathi Yule Lisa Cole opened our Read More…

Spring 2020 Virtual Support Group Meeting Recaps

COVID-19 is affecting many areas of life. While our Support Groups haven’t been able to meet in person because of Stay At Home orders across the country, many have gone virtual. Check our events calendar for upcoming virtual meetings. Below are recaps about some recent Support Group meetings. Greater Atlanta Read More…

How the Central Indiana Ataxia Support Group Was Started

Author: Amy Draves Upon learning that I (Amy) for sure had Ataxia of some kind, I joined the Facebook page of the National Ataxia Foundation. Connecting with people who knew so much more than I did was important to me. On a post by Teressa Cocarro, I saw she was Read More…

Winter 2019-2020 Support Group News

Check out the latest news and meeting recaps from our Ataxia Support Groups around the country. Chicago Ataxia Support Group – December Meeting Recap The Chicago Ataxia Support Group Meeting was held on Saturday, December 14. It was a good turn out with 17 people attending. We all enjoyed lots Read More…

Central Indiana Ataxia Support Group Meeting Recap

Submitted by Amy Draves We had a relatively small in numbers meeting but LOTS of encouragement and support from each other. We had two speakers – Karen Lawrence from RHI and an enthusiastic, wheelchair athlete named Deb. Karen is in charge of the adaptive sports program which is growing with Read More…

Topic Brainstorming

Twin Cities Ataxia Support Group Brainstorms 2020 Programming

Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This was a working meeting to develop the group’s 2020 programming. It was great to see everyone participate in this process by sharing their ideas and Read More…

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