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Registration for 2024 Annual Ataxia Conference is NOW OPEN! Early-bird discount available for a limited time.  LEARN MORE!

May 30 - June 1, 2024

Join us in Orlando

We invite you to be part of the largest Ataxia gathering in the world to learn, share, network, and have fun at this year’s Annual Ataxia Conference: Partnering for Progress! 

Once again, AAC will be a hybrid event with sessions and events happening both in-person and virtually.   

Registration Information

Choose how you’d like to join us at the 2024 Annual Ataxia Conference! In-person registration covers admission to all functions at AAC, including general sessions, a welcome reception, Birds of a Feather sessions, the exhibitor hall, and the Saturday banquet dinner as well as complimentary access to the virtual page. Virtual registration covers access to the online page which will include live-streamed general sessions and virtual birds of a feather sessions.

In-Person


$ 300 per attendee*
  • Register early for this special early bird rate!
$50 DISCOUNT

Virtual Only


$ 50 per attendee
  • Online access

Industry Representative


$ 1000 per attendee
  • In-person and online access

*After 3/22/2024, regular registration will be $350. Regular registration will end 5/24/24. After that, on-site registration is available for $400.
No refunds of registration fees for cancellations after 5/17/2024. Registration at the door is not recommended.

Hotel & Travel Information

The 2024 Annual Ataxia Conference will be held at Caribe Royale Orlando at 8101 World Center Drive in Orlando, FL. 

Guests of Caribe Royale can enjoy a luxurious outdoor swimming pool and hot tub, plus dining at the resort’s 7 different establishments. Please allow yourself extra time to familiarize yourself with the layout of the hotel and area.

Hotel Reservations

NAF will offer a discounted group rate on a first-come, first-served basis. The group rate will be available while inventory lasts until May 6, 2024.

Group Rates (per night)

$214 + $15 resort fee + 12.5% tax
 

Non-ADA Room Reservations

Non-ADA rooms must be booked directly through Caribe Royale. Starting on 1/9/2024, standard room reservations can be made online or by phone. 

To book online, go to book.passkey.com/gt/219570682?gtid=d0de043c37f7d81b98831b460d43f77b.

To book by phone, call (800) 823-8300 and request our special rate under the group name “National Ataxia Foundation.” 

ADA Room Reservations

ADA rooms are limited and cannot be reserved through the hotel. They must be requested through NAF. ADA room reservations will be accepted beginning at 12pm CST on January 9, 2024. Email your request to sarah@ataxia.org or call 763-553-0093 and leave a voicemail with your name and contact information to be added to the waiting list for an ADA room. Calls and emails will be time-stamped and processed in the order they were received. ADA room reservations will be available on a first-come, first-serve basis.
 
For questions about ADA room availability, contact Sarah Pilato, Program Coordinator at 763-553-0093 or sarah@ataxia.org.
 
The width of the bathroom door in the standard sleeping rooms is 32-33″

Additional Travel Info

Whether you’re a theme park enthusiast, bird watcher, foodie, water sports fanatic, sun worshipper, arts patron, serious shopper or anything in between, you’re always welcome in Orlando. The possibilities are endless. And wonder is always within reach. It’s the getaway you deserve — and you’ll only find it in Orlando.

Local Airport:
Orlando International Airport (MCO)
One Jeff Fuqua Boulevard
Orlando, FL 32827

Conference Policies

Travel Grant and Registration Scholarships

We understand that registration and travel costs can be too great of a financial burden for some. We want everyone to have an opportunity to experience AAC. NAF will be awarding a limited number of travel grants for the in-person event and registration scholarships for the virtual event to those with Ataxia who have a financial need. Adults or children with Ataxia are eligible to apply.

In-Person Travel Grant applications will not be reviewed until after the deadline. You will receive notice about the status of your travel grant after 2/29/2024.

In-Person AAC Travel Grant 

  • Complimentary in-person registration 
  • $600 grant received at conference check-in
  • Preference given to first-time attendees
  • Application Deadline is 2/29/2024 
  • Apply now at www.surveymonkey.com/r/5WVCD2B

Virtual AAC Registration Scholarship

Virtual Scholarship applicants will be notified of their application status within 2 weeks of submission

Travel Grants and Scholarships are made possible by generous donors to NAF. Thank you for helping us cover a portion of the costs for those in need!

Agenda

Thursday, May 23rd – Preconference Virtual Birds of a Feather Sessions

Times listed are ET. Sessions available for virtual and in-person attendees.

Click on an agenda item to view the session description and speaker bios.

Session Description

These smaller breakout sessions are interactive discussions for smaller groups by Ataxia type or other affiliation. Choose the session that best fits your situation. If you have Ataxia, choose the session for your type of Ataxia. If you are not sure of your type of Ataxia, attend the Unknown With Family History or the Unknown Without Family History session. If you do not have Ataxia yourself, try the Spouses and Partners Without Ataxia, Family Members Without Ataxia, or a Parents sessions.

Please note: Mature subject matter may be discussed. These sessions are not intended for children aged 12 and under.

Sessions:

  • To be announced

Session Description

These smaller breakout sessions are interactive discussions for smaller groups by Ataxia type or other affiliation. Choose the session that best fits your situation. If you have Ataxia, choose the session for your type of Ataxia. If you are not sure of your type of Ataxia, attend the Unknown With Family History or the Unknown Without Family History session. If you do not have Ataxia yourself, try the Spouses and Partners Without Ataxia, Family Members Without Ataxia, or a Parents sessions.

Please note: Mature subject matter may be discussed. These sessions are not intended for children aged 12 and under.

Sessions:

  • To be announced.

Thursday, May 30th – In-Person Only Arrival Day

All times listed are ET. Sessions available for in-person attendees only.

Click on an agenda item to view the session description.

Come here to check in to receive your attendee badge (required to be worn at all event functions) and attendee gift bag. 

For In-Person Attendees Only

Visit the exhibit hall to learn about research opportunities and other vendors.

For In-Person Attendees Only

Join us to learn about what to expect and how to plan your days.

For In-Person Attendees Only

Friday, May 31st

All times listed are ET.

Click on an agenda item to view the session description.

General Sessions will be live-streamed for the virtual audience. 

Birds of a Feather are smaller break-out sessions arranged by type of Ataxia or other affiliation, such as being a spouse or partner that does not have Ataxia. These sessions are group discussions facilitated by an Ataxia expert. The options listed are subject to change.

  • SCA 1
  • SCA 2
  • SCA3
  • SCA 5 & 8
  • SCA 6
  • SCA 7
  • SCA27A & SCA27B
  • All other SCAs & DRPLA
  • Friedreich Ataxia
  • ARSACS, CANVAS, FXTAS, Spastic Ataxia/Paraplegias, AOA, A-T & all other SCAR/ARCAs
  • Episodic Ataxias (EA 1-8, CACNA1A-Associated Ataxias)
  • Acquired Ataxia & Gluten Ataxia
  • Unknown Type with Family History
  • Unknown Type WITHOUT Family History, Sporadic; MSA-C / OPCA, PSP
  • Under 30 Years Old with Ataxia
  • Spouses/Partners without Ataxia
  • Parents without Ataxia
  • Family Members without Ataxia
  • Non-Family Member Caregivers

General Sessions will be live-streamed for the virtual audience. 

Birds of a Feather are smaller break-out sessions arranged by type of Ataxia or other affiliation, such as being a spouse or partner that does not have Ataxia. These sessions are group discussions facilitated by an Ataxia expert. The options listed are subject to change.

  • SCA 1
  • SCA 2
  • SCA3
  • SCA 5 & 8
  • SCA 6
  • SCA 7
  • SCA27A & SCA27B
  • All other SCAs & DRPLA
  • Friedreich Ataxia
  • ARSACS, CANVAS, FXTAS, Spastic Ataxia/Paraplegias, AOA, A-T & all other SCAR/ARCAs
  • Episodic Ataxias (EA 1-8, CACNA1A-Associated Ataxias)
  • Acquired Ataxia & Gluten Ataxia
  • Unknown Type with Family History
  • Unknown Type WITHOUT Family History, Sporadic; MSA-C / OPCA, PSP
  • Under 30 Years Old with Ataxia
  • Spouses/Partners without Ataxia
  • Parents without Ataxia
  • Family Members without Ataxia
  • Non-Family Member Caregivers

For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community.

This session is accessible for people in chairs and wheelchairs – no previous experience is necessary to attend.

Saturday, June 1st

All times listed are ET.

Click on an agenda item to view the session description.

General Sessions will be live-streamed for the virtual audience. 

General Sessions will be live-streamed for the virtual audience. 

For In-Person Attendees Only

Birds of a Feather Sessions

Birds of a Feather are smaller break-out sessions arranged by type of Ataxia or other affiliation, such as being a spouse or partner that does not have Ataxia. These sessions are group discussions facilitated by an Ataxia expert. The Birds of a Feather options at the 2024 Annual Ataxia Conference are listed below:

Sessions

Below are the topics that will be covered in general or breakout sessions.

Schedule is subject to change.

Speakers

NAF invites world-leading Ataxia researchers and physicians to present at AAC. Check out our lineup of industry experts!

Meron Azage, MS, CGC

Amy Bastian, PhD

Shelbi Davenport

Community Member

Liam Dougherty

Community Member

Elizabeth Foss, OTR/L

Allison Hilger, PhD, CCC-SLP

Jocelyn Jiao, MD

Dana Mauro

Community Member

Lauren Moore, PhD

NAF Chief Scientific Officer

Jessica Oberlin

Community Member

Sarah Pilato

NAF Community Services Coordinator

Aaron Ritter, MD

Andrew Rosen

NAF Chief Executive Officer

Liana Rosenthal, MD, PhD

Celeste Suart, PhD

NAF Patient Engagement Manager

Vikram Shakkottai, MD, PhD

Joel Sutherland

NAF VP of Development

Kory Macy

Community Member

Lauren Zelouf, MSW, LCSW

2024 AAC Sponsors

We’re looking for partners to support 2024 AAC and help us bring this impactful program to the Ataxia community! Thank you to our sponsors who have already committed to supporting this event!.

Platinum Sponsor

Sponsors

Want to help bring this important resource to the Ataxia community? Sponsor our event! Contact Joel Sutherland at joel@ataxia.org for more information. 

LEARN ABOUT SPONSORING AAC >>

Exhibit at AAC

AAC attendees enjoy visiting the Ataxia Marketplace to learn about products, services, Ataxia clinics, and research opportunities. For our hybrid event, we have in-person and virtual-only exhibit packages available.

Contact Sarah Pilato at sarah@ataxia.org for more information. 

DOWNLOAD EXHIBIT INFORMATION >>

General Questions

If you have other questions about AAC, please contact Sarah Pilato at sarah@ataxia.org for more information or call us at 763-553-0020. 

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