NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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Disability Services and Financial Planning Information and resources on disability services and financial planning for people impacted by Ataxia. What is Disability? What are Disability Services? Disability is broadly defined as any condition that makes it more difficult for a person to do certain activities or interact with the world Read More…
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It is an exciting opportunity for our organization, Ataxia Connection, to travel and attend the Annual Ataxia Conference (AAC) as a group and network with other individuals and care partners in the Ataxia community across the U.S., along with meeting the Read More…
Submitted by Mark Holdenried Attending the 2025 Annual Ataxia Conference (AAC) in Las Vegas was a meaningful and energizing experience. From the travel experience to sessions, each moment added to the feeling that we truly are not alone in this journey. Meaningful Moments and New Connections Before even boarding the Read More…
In clinical research, scientists design studies to learn more about diseases and answer questions about new treatment options. Interventional clinical trials are used to better understand the safety and effectiveness of a new drug or medical device. Observational clinical trials help researchers learn more about how diseases develop over time Read More…
Guest Author: Ellie Martin Ellie, who has Cerebellar Ataxia, tried out the BoBo Core Training Balance Board and shared her experience. The interactive balance board pairs with a versatile app to offer an experience that is different from traditional exercise equipment. Check out her review of this unique fitness tool… Read More…
Getting a new medicine approved for use in the United States involves a detailed process overseen by the U.S. Food and Drug Administration (FDA). This process is called the New Drug Application (NDA). NDAs are crucial for making sure medicines are safe and effective before they’re available to the public. Read More…
Guest Author: Ellie Martin Physical therapy is good for rehabilitation. However, it can be straining on our muscles by the end of a session. Aquatic therapy is a way to help relax muscles while also providing the same benefits as land therapy. Aquatic therapy is described as a technique that Read More…
This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of NAF at www.ataxia.org/JoinNAF. Hello from NAF’s Clinical Services Team Happy summer, all! I am pleased to present the latest edition Read More…
Guest Author: Ellie Martin For those who participate in physical therapy, you might be aware that balance exercises are very helpful for those of us with Ataxia. Mayo Clinic says that balance exercises are especially important because they can help prevent falls and keep you independent. It can get boring Read More…
Guest Author: Ellie Martin Many people practice yoga for its long-lasting effects on the body. For people with limited mobility, it may be trickier to practice traditional yoga. Fortunately, chair yoga is a great option that provides the same benefits as traditional yoga. Chair yoga is accessible to anyone, even Read More…
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