NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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Artisans for Ataxia A virtual art auction that showcases original, handcrafted works to raise funds and awareness for Ataxia. DONATE ARTWORK HOW THE AUCTION WORKS CONTACT US Artisans for Ataxia is a vibrant online auction that brings together artists and supporters to fuel progress in the fight against Ataxia. This Read More…
Cooking with Troy A webinar series for confidence in the kitchen. UPCOMING SESSIONS MEET CHEF TROY PAST SESSIONS DONATE Cooking with Troy is a new webinar and live demonstration series from NAF featuring Chef Troy Stewart, a professional chef living with Gluten Ataxia. These fun, engaging sessions are designed to Read More…
A generous family stepped forward to MATCH THE MATCH for April’s Accelerate! Double the Drive campaign. They contributed an additional $50,000 in memory of Carol Tate, whose legacy continues to inspire hope for families affected by Ataxia. We’re grateful for her family’s continued support of NAF’s mission to accelerate treatment Read More…
Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary School participants came together to celebrate a former student with Ataxia, raise vital funds for the community, and have a blast doing it (check out those Read More…
NAF is hiring a full time Regional Development Manager. This person will be responsible for generating revenue via traditional non-profit revenue streams including major gifts, recurring gifts, planned gifts, individual giving, corporate and foundation giving, memorials, third party fundraising events and sponsorship procurement. This position will also assist with the Read More…
At the NAF, we pride ourselves on celebrating every victory in our community. From groundbreaking research and new therapies to success stories and inspirational fundraising efforts – these triumphs belong not just to us, but to all of you. Your ongoing support and participation make these milestones possible. We’re excited Read More…
My name is Tanoa and I am NAF’s Social Media Coordinator. I am proud to announce that I will be climbing Mount Kilimanjaro alongside Mike De Rosa this October! I will be there to document the journey through pictures and video and support Mike’s efforts as a compatriot on his Read More…
With Mother’s Day approaching, NAF would like to recognize all the amazing moms in the Ataxia community. Whether you are a mother navigating her own diagnosis or caring for loved ones living with theirs, we know that you face this journey with courage, strength, and resiliency. You are an inspiration. Read More…
Mike De Rosa, a 23-year Green Beret Special Forces Veteran, is set to hike Mount Kilimanjaro in October to raise awareness for Ataxia. Mike, a North Carolina native, entered the United States Army in June 1982, immediately after finishing High School. Eyes set on joining the Special Forces group, he served Read More…
In 2018, the Gordon and Marilyn Macklin Foundation and NAF partnered on a critical project for the Ataxia community: A relaunch of the Clinical Research Consortium for the Study of Cerebellar Ataxias, better known as the CRC-SCA Natural History Study. The CRC-SCA is an ongoing clinical study that aims to Read More…
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