In 2018, the Gordon and Marilyn Macklin Foundation and NAF partnered on a critical project for the Ataxia community: A relaunch of the Clinical Research Consortium for the Study of Cerebellar Ataxias, better known as the CRC-SCA Natural History Study. The CRC-SCA is an ongoing clinical study that aims to Read More…
You know that we ask for your donations to help us fund more Ataxia research. You know that research grants are only possible because of generous gifts from people like you. You know that research is the key to finding effective treatments and a cure. But do you know why Read More…
Guest Author: Courtney Ng Hope for Ataxia is pleased to present the virtual fundraiser, The Ataxia Burpee Challenge, to raise much needed funds for the National Ataxia Foundation. Please donate or sign up here: https://app.mobilecause.com/vf/ABC21 You can sign up as a solo participant quickly and easily. After you have clicked “Become Read More…
Let’s have some fun with the Summer Match Challenge! Thanks to an NAF supporter, we have a $100 VISA Gift Card to give away at the end of the month! We’ll start each week with a new challenge. Complete the challenge to receive an entry into the drawing for the Read More…
Author: Joel Sutherland, Director of Development Pictured above: Hikers in the 2021 Country Skies Extreme Hike for Ataxia The participants in the 2021 Country Skies Xtreme Hike were soaked and worn out as they did their best to deal with the wet conditions Mother Nature delivered on Saturday, April 24th Read More…
We are excited to announce the return of the Summer Match Challenge! This event is always one of the most celebrated and popular fundraising activities of the year. The Michael and Patricia Clementz-Peterson Family Fund has again committed to matching all funds contributed up to $100,000! Their generosity and commitment Read More…
Author: Joel Sutherland, Development Director Mark your calendar for Saturday, October 3rd beginning at 1:00pm EDT for the 2020 National Ataxia Foundation Virtual Walk N’ Roll. Register to join us AND win prizes. This Virtual Walk n’ Roll will feature appearances from many people across our Ataxia community. You will hear from Read More…
Author: Joel Sutherland, Development Director Uncertain times? I don’t think so! Granted, we are not sure if summer camps will be open for the kids in the next several weeks. We are not sure when scheduled weddings will take place with more than 10 people in attendance or when family Read More…
Last year, Mike De Rosa Sr. and Ed Brand started the Joint Mission Bataan to Cure Ataxia (JMB). They marched more than 26 miles through the desert to support NAF’s mission and raise awareness about Ataxia. Together, they raised more than $35,000. This year, we had 31 representatives step up across the country Read More…
Author: Joel Sutherland, NAF Development Director Only 26 spots remain in the 2020 Joint Mission Bataan to Cure Ataxia campaign. Would you like to join us? To refresh your memory, this campaign, that we call JMB, is an expansion of last years’ effort led by North Carolina resident, Mike De Rosa and Read More…
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