Skip to content
Skip to content

Join our free Let’s Move Exercise Program! Accessible, expert-led virtual sessions to help you build strength and improve balance from home. REGISTER

Research Pipeline

Events

Support Groups

About NAF

Search

NAF

National Ataxia Foundation Partners with Biogen to Bring Bill Nye “the Science Guy” Back To the Lab With New Series About Friedreich Ataxia

September 25, 2025

Minneapolis, MN (September 25, 2025) – The National Ataxia Foundation (NAF) today announced the launch of The Science Guy: Back in the Lab for FA, a new educational campaign to raise awareness and understanding of Friedreich ataxia (FA), a rare, genetic disease. The campaign, in partnership with leading biotechnology company, Read More…

NAF is Hiring a Regional Development Manager

September 12, 2025

NAF is hiring a full time Regional Development Manager. This person will be responsible for generating revenue via traditional non-profit revenue streams including major gifts, recurring gifts, planned gifts, individual giving, corporate and foundation giving, memorials, third party fundraising events and sponsorship procurement. This position will also assist with the Read More…

NAF CEO Featured on Mission Matters Podcast

July 10, 2025

We’re excited to share that our CEO, Andrew Rosen, was recently featured on the Mission Matters podcast! In the episode, titled “Raising Awareness and Advancing Research,” Andrew discusses NAF’s commitment to accelerating treatment development, supporting families affected by Ataxia, and building a world without this devastating disease. The conversation touches Read More…

Ataxia Tips

June 15, 2025

Ataxia Tips Real advice from real people living with Ataxia. SUBMIT A TIP RECENT TIPS FOLLOW #AtaxiaTipTuesday Living with Ataxia means adapting every day—and sometimes, it’s the little tips that make a big difference. This series features real advice from real people in the Ataxia community—simple things they’ve done to Read More…

Artisans for Ataxia

June 11, 2025

Artisans for Ataxia A virtual art auction that showcases original, handcrafted works to raise funds and awareness for Ataxia. DONATE ARTWORK HOW THE AUCTION WORKS CONTACT US Artisans for Ataxia is a vibrant online auction that brings together artists and supporters to fuel progress in the fight against Ataxia. This Read More…

Cooking with Troy

May 7, 2025

Cooking with Troy A webinar series for confidence in the kitchen. UPCOMING SESSIONS MEET CHEF TROY PAST SESSIONS DONATE Cooking with Troy is a new webinar and live demonstration series from NAF featuring Chef Troy Stewart, a professional chef living with Gluten Ataxia. These fun, engaging sessions are designed to Read More…

Help Us Urge the FDA to Act on Rare Disease Treatments

April 30, 2025

Ataxia doesn’t wait—and neither should treatment. NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA). With an estimated 15,000 people in the U.S. affected by SCA, it’s time for decision-makers to understand the impact Read More…

Stay Informed About Ataxia Research with SCAsource

April 28, 2025

If you’ve ever felt overwhelmed trying to understand complex medical research, you’re not alone. That’s why SCAsource was created—to make Ataxia research accessible to everyone. What is SCAsource? SCAsource is a publication where Ataxia researchers write plain-language articles about the latest research studies and scientific discoveries. It’s designed specifically for Read More…

Celebrating Carol’s Life and Commitment to the Ataxia Community

April 21, 2025

A generous family stepped forward to MATCH THE MATCH for April’s Accelerate! Double the Drive campaign. They contributed an additional $50,000 in memory of Carol Tate, whose legacy continues to inspire hope for families affected by Ataxia.  We’re grateful for her family’s continued support of NAF’s mission to accelerate treatment Read More…

Categories
Translate »

Join the Ataxia community today!

Become a free member for exclusive content from NAF.

SIGN UP