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National Ataxia Foundation

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SCAsource Project Update

SCAsource is Partnering with the National Ataxia Foundation

The SCAsource team is excited to announce that we are partnering with the National Ataxia Foundation (NAF) to improve our website infrastructure! As you know, SCAsource is run by a team of volunteers, mainly graduate students and post-doctoral fellows from ataxia research labs. We’re researchers, not web designers, but we’ve Read More…

SCAsource Becomes a Partner of the Ataxia Global Initiative

The SCAsource team is pleased to announce that we have become a partner of the Ataxia Global Initiative (AGI)! The AGI is an international collaboration to assist the development of treatments for ataxia. Some of the work of the AGI includes promoting open data sharing and building skills to prepare Read More…

SCAsource Receives its First External Funding!

Hi everyone! This is a quick message from the volunteers behind SCAsource. We are super excited to announce that we have received our first external financial support, a £1,200 grant from Ataxia UK. Ataxia UK is a charity organization located in the United Kingdom which supports people affected by any Read More…

International Ataxia Awareness Day 2020

Today marks International Ataxia Awareness Day, which is celebrated every year on September 25th. IAAD brings people together from around the world to raise awareness about this group of rare diseases and to raise money for continuing research efforts. Here at SCAsource, we are celebrating International Ataxia Awareness Day 2020 Read More…

You asked, We listened: Introducing SCAsource Spotlights

Hi everyone! This is a quick message from the volunteers behind SCAsource. About a year ago we conducted a feedback study to ask what we were doing well and what we could change or improve. Some of the changes we hoped to introduce back in the spring were delayed due Read More…

Rare Disease Day 2020

Today marks Rare Disease Day, which aims to raise awareness for the 300 million people around the world who live with rare diseases. Spinocerebellar ataxia, Friedreich’s Ataxia, and ARSACS are just a few of the of over 6000 rare diseases that have been identified. The main goal of raising awareness Read More…

Happy Holidays from SCAsource!

Sorry, no new article this week. The staff and volunteers are taking a small break. We will be back next week with a new article in January 2020. Happy New Year! Image of New Year’s fireworks. Photo by Pixabay on Pexels.com Read More…

Last chance to participate in our reader feedback survey!

Our reader feedback survey closes on Monday, December 2 at 7:00AM. If you haven’t had the chance yet to give your feedback, you can read more information about the survey study here and access the online survey at this link. Thank you in advance, your feedback is invaluable! And thank Read More…

1 Year Anniversary of SCAsource!

SCAsource launched one year ago today on September 27, 2018. In that time we’ve had over 18,000 views and published over 40 articles. Now we are launching a survey about the website to make sure we are meeting our goals. SCAsource is turning a year old! A huge thank you Read More…

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