ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
People with Ataxia who rely on Medicaid coverage may be impacted by new Medicaid community engagement requirements and may be required to provide proof of the severity of their health condition to be exempted. The process will vary by state, so it is important to pay attention to Medicaid communications, Read More…
For many families affected by Ataxia, becoming a caregiver isn’t something that happens all at once. It happens gradually through driving to more appointments, helping with mobility, researching treatments, navigating insurance, modifying a home, managing medications, or simply making sure a loved one can safely participate in everyday life. Over Read More…
Location Gainesville, FL USA Website www.neurogenetics.med.ufl.edu/patients/brain-donation-program/ Phone Number (352) 273-5189 Email dgmorrison@ufl.edu Geographic Restrictions Continental USA Other Restrictions Donations are restricted to forms of Ataxia characterized by genetic Repeat Expansions. (SCA1, 2, 3, 5, 6, 7, 8, 10, 12, 17, 27b (50), 36, and CANVAS. The program requires completion of an Informed Consent Form Read More…
Written by Taylor Stolberg Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Graduate Research Fellowship (2024): “Elucidating cholesterol Read More…
Hello, my name is Ad, I am 62 years old and I live in the Netherlands. I am married with Marina and we have a daughter Dorith. Since September 2023 we have a grandson Matteo. Some 10 years ago I sometimes lost my balance and fell. I had no reason Read More…
