NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
CENTRAL TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Meeting Information
Meetings are from 11am-1pm; lunch is provided
Topic: “Mental Health and Wellness Therapy – What is it? What do I need to know?”
Description: Q&A Session with the Ataxia Connection Social Workers, Erin Bagwell and CJ Hatfield. Therapy is a special commitment that can help minimize or elevate troubling issues in your life. It is a professional, confidential, non-judgmental, and uplifting experience that can truly be life changing. In this session you will:
Meeting location: UNO Community Engagement Center (CEC) 6400 South University Dr Rd North, Omaha, NE 68182
Visit our website for the link to join virtually.
Join virtually via Zoom if you cannot attend in person. Our zoom link is –https://us02web.zoom.us/j/81319965524?pwd=MGN3ME1wenp3bEZtbGJreVQzRVVzdz09, Meeting ID: 813 1996 5524, Passcode: 027035
Contact Information
For information and for links to join virtually, visit our website: ataxiaconnection.org/events/
For more information contact: Theresa Nelson, 402-979-6331, theresa.nelson@ataxiaconnection.org
or Sharon Hardel, info@ataxiaconnection.org
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
