NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
MOUNTAIN TIME ZONE
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others.
Hello Colorado Ataxia Support Group! Please fill out this RSVP form for the upcoming anniversary party: https://forms.gle/7mVAhLhKC3esyLcP8
The 20th anniversary party is coming up on March 20th from 1-3:30pm in-person at the University of Colorado Anschutz Medical Campus! (The specific address and parking directions will be sent out soon). Dr. Hawkins will be joining us as well as a few other medical practitioners from the Movement Disorders Clinic. Note that this party is sponsored by the Movement Disorders Clinic with some additional funding from the NAF. Lunch and food will also be provided, thanks to the NAF! Thank to both the Clinic and the NAF! Please fill out this form to RSVP so we can get a head count for food: https://forms.gle/7mVAhLhKC3esyLcP8
Allison Hilger
Email: allison.hilger@colorado.edu
Michael Williams
Email: mjnuggs@gmail.com
Becky Crowe
Email: beckycrowe22@gmail.com
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
