Name: PrepRARE: CRC-SCA Natural History Study Information Panel
Start: 2024-04-15T12:00:00-05:00
End: 2024-04-15T13:00:00-05:00
Location: Zoom Webinar

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PrepRARE: CRC-SCA Natural History Study Information Panel

April 15 @ 12:00 pm - 1:00 pm

CENTRAL TIME ZONE

Have you ever wondered what it is like to participate in an Ataxia natural history study? This type of research study collects data about how specific types of Ataxia progress over time. Come learn about the CRC-SCA Natural History Study! This panel will feature current study participants and clinical research coordinators. They will talk about what it is like to be part of this study, explain how to get involved, and answer your questions about the CRC-SCA Natural History Study.

Please note: The CRC-SCA Natural History Study currently accepts patients with SCA 1, 2, 3, 6, 7, 8, 10, 27B, or RFC1 Ataxia/CANVAS.

Speaker Information

Laura Crespo, Clinical Research Coordinator
National Ataxia Foundation

Laura has a BS in Integrative Neuroscience from Binghamton University and 7+ years in a leadership position within intensive clinical research laboratories. In her role, Laura coordinates the Clinical Research Consortium for the Study of Cerebellar Ataxias (CRC-SCA), which manages an NAF-sponsored Natural History Study. She maintains protocols, contracts, IRB documentation, and best data practices – overseeing study timelines, recruitment goals, and invoicing. Laura is committed to supporting the needs of the site clinics because she knows that successful management of the CRC-SCA natural history study is crucial to accelerating treatment development for families affected by Ataxia.

Chelsea Chen, Lead SCA Clinical Research Coordinator
University of California, San Francisco

Chelsea Chen is the current lead SCA clinical research coordinator at the University of California, San Francisco (UCSF), working with Drs. Geschwind, Dietiker, and Nelson. She received her BA in Psychology from UC Berkeley in 2020 and has been a coordinator for CRC-SCA since April 2022.

Tyler Maxwell, Assistant Professor of Pharmacy Practice
Touro College of Pharmacy

Tyler Maxwell was originally born in Merced, California. He currently works as an Assistant Professor of Pharmacy Practice at Touro College of Pharmacy and practices as an Infectious Disease Pharmacist at SUNY Downstate Health Sciences University. Tyler was diagnosed with SCA2 in his early teens and has participated in the national history study for approximately 10 years between the LA and NY locations.

Other Webinars

NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living with Ataxia. Webinars are complimentary for NAF members, with new sessions offered each month. Join NAF to receive invitations to upcoming Ataxia webinars. Visit www.ataxia.org/webinars to explore past webinars on a variety of topics.