Webinar
What Does That Mean? A Crash Course in Ataxia Diagnosis Lingo
Zoom WebinarCENTRAL TIME ZONE Have you ever had questions about the terms used to describe different types of ataxia? Are you confused about what kind of ataxia you have based on your diagnosis paperwork? Do you wonder about the difference between different kinds of ataxia? If yes, then this webinar is for you. This session will
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
Cooking with Troy
Zoom WebinarCENTRAL TIME ZONE Join us for Cooking with Troy, a fun and inclusive webinar series led by Chef Troy Stewart, a professional chef living with Gluten Ataxia. Whether you're a beginner or a seasoned home cook, these sessions are designed to help people of all ability levels feel more confident and independent in the kitchen.
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H9csqjGUQ4SqEbuiL83gfw Please do not submit questions
All About Gluten Ataxia
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of Gluten Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by
All About SCAR20
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Autosomal Recessive Spinocerebellar Ataxia type 20 (SCAR20)*, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. *This webinar is about Autosomal
Visual Symptoms & Treatments for Ataxia
Zoom WebinarCENTRAL TIME ZONE This webinar will discuss visual symptoms associated with Ataxia. This includes double vision and other symptoms associated with eye movement abnormalities, which occur in Cerebellar Ataxia of any cause, as well as some discussion of retinal and optic nerve disease, which may occur in some specific genetic causes of Ataxia. Register: Click here.
Coffee Chat for Parents of School-Aged Kids with Ataxia
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
Chair Yoga & Mobility for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
PrepRARE: All About Pre-Symptomatic Ataxia
Zoom WebinarCENTRAL TIME ZONE We use the term "pre-symptomatic" to describe someone who has the genetic mutation to develop Ataxia, but is not yet experiencing symptoms. In this webinar, we will be joined by a neurologist and a certified genetic counselor to discuss common questions about pre-symptomatic Ataxia. Topics will include genetic testing, insurance, lifestyle modifications,