Webinar
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_0f85S8NQTViH1ecKCDdy-A Please do not submit questions
All About SCA50
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA50, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented
All About Botox Treatment for Movement Disorders
Zoom WebinarCENTRAL TIME ZONE Join our upcoming webinar to explore the benefits and considerations of using Botox for managing symptoms like tremor, dystonia, spasticity, and neuropathic pain. This session will cover everything from the basics of Botox, how it works, and who might be a candidate, to the potential side effects and how to find experienced
All About SCA28 and SPAX5
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 28 (SCA28) and Autosomal Recessive Spastic Ataxia type 5 (SPAX5), the typical diagnostic journey for those affected, and what to expect for clinical care. Anyone with symptoms caused by mutations in
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
All About Paraneoplastic Cerebellar Degeneration
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Paraneoplastic Cerebellar Degeneration , the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about
Chair Yoga & Mobility for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
Introduction to Disability Services and Financial Planning
Zoom WebinarCENTRAL TIME ZONE Join us for an introductory webinar designed to help individuals and families understand the essential aspects of disability services and financial planning. Whether you are navigating the complexities of disability benefits or preparing for long-term financial stability, this session will provide you with the knowledge and resources you need to make informed
PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
Zoom WebinarCENTRAL TIME ZONE Thinking about joining a clinical trial but unsure what it really involves? The Weill Cornell Medicine Department of Genetic Medicine team will take you behind the scenes and give you an inside look at the research participant experience, with a focus on their Friedreich’s Ataxia (FA) gene therapy trial. Their expert coordinator
All About Acute Cerebellar Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at Acute Cerebellar Ataxia, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Acute Cerebellar Ataxia is a form of Ataxia caused by a previous infection in the cerebellum
