Webinar
Coffee Chat for Parents of School-Aged Kids with Ataxia
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
Ataxia Research Explained: Fruit Fly Models
Zoom WebinarCENTRAL TIME ZONE One of the common questions we get asked at NAF is why fruit flies are used for Ataxia research. If you have ever wondered about this, then this webinar is for you! In this session, we will discuss what information fruit flies can tell us about ataxia and how these findings can
Cooking with Troy
Zoom WebinarCENTRAL TIME ZONE Join us for Cooking with Troy, a fun and inclusive webinar series led by Chef Troy Stewart, a professional chef living with Gluten Ataxia. Whether you're a beginner or a seasoned home cook, these sessions are designed to help people of all ability levels feel more confident and independent in the kitchen.
Chair Yoga & Mobility for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
All About SCA35
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of All About SCA35, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented
BRAVE: A New Pediatric Clinical Trial Opportunity for Friedreich Ataxia
Zoom WebinarCENTRAL TIME ZONE Join Biogen for a webinar on Thursday, August 28, at noon Eastern Time where Nicolas Folschweiller, PhD., Senior Medical Director, Clinical Development – Neuromuscular Development Unit, at Biogen, will share information about the upcoming BRAVE study: a global Phase 3 pediatric study for omaveloxolone. Anyone considering participating in a clinical trial or trying a new
Coffee Chat for Parents of School-Aged Kids with Ataxia
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
AROATXN2-1001: A Phase 1 Placebo-controlled Study to Evaluate ARO-ATXN2 in Adult Subjects with Spinocerebellar Ataxia Type 2
Zoom WebinarCENTRAL TIME ZONE This webinar will provide information about Arrowhead Pharmaceuticals’ ongoing Phase 1 study of ARO-ATXN2 in patients with Spinocerebellar Ataxia Type 2 (SCA2), including the rationale for an siRNA therapeutic approach, an overview of the study design and eligibility requirements for participation, and how patients can contact sites to learn more. Register: Click
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_vjPMuWgoTBab0LKU67kMGQ Please do not submit questions
All About Sialidosis
ZoomCENTRAL TIME ZONE During this webinar, an expert will discuss Sialidosis, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into these disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living
