Webinar
All About Gluten Ataxia
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of Gluten Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by
All About SCAR20
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Autosomal Recessive Spinocerebellar Ataxia type 20 (SCAR20)*, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. *This webinar is about Autosomal
Visual Symptoms & Treatments for Ataxia
Zoom WebinarCENTRAL TIME ZONE This webinar will discuss visual symptoms associated with Ataxia. This includes double vision and other symptoms associated with eye movement abnormalities, which occur in Cerebellar Ataxia of any cause, as well as some discussion of retinal and optic nerve disease, which may occur in some specific genetic causes of Ataxia. Register: Click here.
Coffee Chat for Parents of School-Aged Kids with Ataxia
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
Chair Yoga & Mobility for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
PrepRARE: All About Pre-Symptomatic Ataxia
Zoom WebinarCENTRAL TIME ZONE We use the term "pre-symptomatic" to describe someone who has the genetic mutation to develop Ataxia, but is not yet experiencing symptoms. In this webinar, we will be joined by a neurologist and a certified genetic counselor to discuss common questions about pre-symptomatic Ataxia. Topics will include genetic testing, insurance, lifestyle modifications,
All About Unknown Ataxia with Family History
Zoom WebinarCENTRAL TIME ZONE During this session, our expert will teach us how Unknown Ataxia with Family History is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
Research and Treatment Development for Unknown Ataxia with Family History
Zoom WebinarCENTRAL TIME ZONE During this session, our expert will teach us how Unknown Ataxia with Family History is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
Living with Loss: Navigating Grief in Chronic Illness
Zoom WebinarCENTRAL TIME ZONE Living with a chronic illness means living with infinite loss. This can lead to persistent feelings of grief. How do we walk through such difficulty and still hold on to hope? This webinar will explore how grief impacts the lives of those living with a limiting diagnosis along with its impact on
Chronic Cough Management
Thrive Together on Thursdays Wellness Presentations Goal: To provide ataxia patients with education, information and resources that help individuals positively self manage their condition and optimize quality of life. On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, July 24 @ 1:00 pm (ET) "Chronic
