Science Showcase: Dr. Hellyer

Zoom Webinar

CENTRAL TIME Dr. Shane Hellyer will present the research, "Characterization of naturally occurring mGlu1 mutations in SCA44 and SCAR13." Science Showcase sessions explore a past NAF research grant awardee's funded study to gain scientific insights about their Ataxia research. Register for Webinar: Click here. Lay Summary: Spinocerebellar ataxias (SCAs) are a group of debilitating movement

FREE

All About SCA5

Zoom Webinar

CENTRAL TIME Do you or a loved one have SCA5? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis. Register: Click here.

FREE

Care Partners: Support for Spouses and Partners

Zoom Webinar

CENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey. Register: Click here.   About the Care

FREE

Research and Treatment Development for SCA5

Zoom Webinar

CENTRAL TIME Adam Avery, PhD will teach us how SCA5 is studied and give an overview of the current state of research and drug development for the disease. Register for Webinar: Click here.  

FREE

NAF Science Showcase: Dr. Maimuna Paul

Zoom Webinar

CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Maimuna Paul will present the research, "Molecular and cellular mechanisms in EBF3-related cerebellar ataxias and neurodevelopmental disorders." Register for Webinar: Click here.  Research Lay Summary: The overall goal of this project is to identify the molecular

FREE

All About SCA14

Zoom Webinar

CENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia Type 14 (SCA14), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here.  Speaker Information  Dong-Hui Chen, MD,

FREE

Ask the Ataxia Expert

Zoom Webinar

CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H6YG5LgfQEyZc4zgz_4Dzw Please do not submit questions

FREE

NAF Science Showcase: Dr. Hannah Shorrock

Zoom Webinar

CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hannah Shorrock will present the research, "A CAG expansion selective small molecule screen for multiple spinocerebellar ataxias." Register for Webinar: Click here. Research Lay Summary: The spinocerebellar ataxias (SCAs) are a group of dominantly inherited neurodegenerative

FREE

All About Ataxia Caused by Stroke

Zoom Webinar

CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by stroke, including the typical diagnostic journey for those affected, what to

FREE