Webinar
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Global Genes and Child Neurology Foundation Patient Services & Resources
Zoom WebinarCENTRAL TIME ZONE Get connected to more resources provided by Global Genes and the Child Neurology Foundation. You will learn about the Child Neurology Foundation's Family Support Program is designed to help families with the emotional and social challenges of raising a child with complex healthcare needs. Through our Family Support Program, families can learn
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NAF Science Showcase: Dr. Hübener-Schmid
Zoom WebinarCENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hübener-Schmid will present the research, "Development and Validation of a SIMOA-based mutant Ataxin-3 Immunoassay for biomarker studies in SCA3." Register: Click here. Research Lay Summary: Disease protein lowering are key therapeutic strategies for several neurodegenerative diseases including
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Research and Treatment Development for ARSACS
Zoom WebinarCENTRAL TIME ZONE During this session, our expert will teach us how Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay or ARSACS is studied and give an overview of the current state
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Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
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All About SCA4
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA4, the typical diagnostic journey for those affected, and
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Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
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Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without
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All About SCA50
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA50, the typical diagnostic journey for those affected, what
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All About Botox Treatment for Movement Disorders
Zoom WebinarCENTRAL TIME ZONE Join our upcoming webinar to explore the benefits and considerations of using Botox for managing symptoms like tremor, dystonia, spasticity, and neuropathic pain. This session will cover
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All About SCA28 and SPAX5
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 28 (SCA28) and Autosomal Recessive Spastic
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