Webinar
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Living with Loss: Navigating Grief in Chronic Illness
Zoom WebinarCENTRAL TIME ZONE Living with a chronic illness means living with infinite loss. This can lead to persistent feelings of grief. How do we walk through such difficulty and still hold on to hope? This webinar will explore how grief impacts the lives of those living with a limiting diagnosis along with its impact on
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Chronic Cough Management
Thrive Together on Thursdays Wellness Presentations Goal: To provide ataxia patients with education, information and resources that help individuals positively self manage their condition and optimize quality of life. On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, July 24 @ 1:00 pm (ET) "Chronic
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Understanding and Managing Urinary Symptoms in Ataxia Disorders
Zoom WebinarCENTRAL TIME ZONE Urinary symptoms are frequently experienced in individuals with Ataxia and may arise from nervous system changes or primary urological issues such as prostate enlargement (in men) or pelvic organ prolapse (in women). While these symptoms can be disruptive and impact quality of life, they rarely lead to kidney damage. The type of
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Coffee Chat for Parents of School-Aged Kids with Ataxia
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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Ataxia Research Explained: Fruit Fly Models
Zoom WebinarCENTRAL TIME ZONE One of the common questions we get asked at NAF is why fruit flies are used for Ataxia research. If you have ever wondered about this, then this webinar is for you! In this session, we will discuss what information fruit flies can tell us about ataxia and how these findings can
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Cooking with Troy
Zoom WebinarCENTRAL TIME ZONE Join us for Cooking with Troy, a fun and inclusive webinar series led by Chef Troy Stewart, a professional chef living with Gluten Ataxia. Whether you're a beginner or a seasoned home cook, these sessions are designed to help people of all ability levels feel more confident and independent in the kitchen.
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Chair Yoga & Mobility for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
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All About SCA35
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of All About SCA35, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented
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BRAVE: A New Pediatric Clinical Trial Opportunity for Friedreich Ataxia
Zoom WebinarCENTRAL TIME ZONE Join Biogen for a webinar on Thursday, August 28, at noon Eastern Time where Nicolas Folschweiller, PhD., Senior Medical Director, Clinical Development – Neuromuscular Development Unit, at Biogen, will share information about the upcoming BRAVE study: a global Phase 3 pediatric study for omaveloxolone. Anyone considering participating in a clinical trial or trying a new
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Coffee Chat for Parents of School-Aged Kids with Ataxia
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
FREE
