Webinar
Support for Parents of Adult Children
Zoom WebinarCENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover
CRC-SCA Natural History Study Canadian Information Panel / Table Ronde Canadienne Sur L’Étude D’Histoire Naturelle du CRC-SCA
Zoom WebinarCENTRAL TIME ZONE (Le français suit l'anglais) Have you ever wondered what it is like to participate in an ataxia natural history study? This type of research study collects data
All About SCA12
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 12 (SCA12), the typical diagnostic journey
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without
Chair Yoga for Ataxia
Zoom WebinarCENTRAL TIME For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
All About Hypertrophic Olivary Degeneration
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will discuss Hypertrophic Olivary Degeneration, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview
NORD: Alone we are rare. Together we are strong®
Zoom WebinarCENTRAL TIME ZONE NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, they elevate care, advance research, and
All About Gene Therapy
Zoom WebinarCENTRAL TIME ZONE In this session, we will learn what gene therapy is, the different types of gene therapy, and how gene therapy could be used to treat Ataxia in
