Webinar
Global Genes and Child Neurology Foundation Patient Services & Resources
Zoom WebinarCENTRAL TIME ZONE Get connected to more resources provided by Global Genes and the Child Neurology Foundation. You will learn about the Child Neurology Foundation's Family Support Program is designed to help families with the emotional and social challenges of raising a child with complex healthcare needs. Through our Family Support Program, families can learn
NAF Science Showcase: Dr. Hübener-Schmid
Zoom WebinarCENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hübener-Schmid will present the research, "Development and Validation of a SIMOA-based mutant Ataxin-3 Immunoassay for biomarker studies in SCA3." Register: Click here. Research Lay Summary: Disease protein lowering are key therapeutic strategies for several neurodegenerative diseases including
Research and Treatment Development for ARSACS
Zoom WebinarCENTRAL TIME ZONE During this session, our expert will teach us how Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay or ARSACS is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
All About SCA4
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA4, the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_0f85S8NQTViH1ecKCDdy-A Please do not submit questions
All About SCA50
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA50, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented
All About Botox Treatment for Movement Disorders
Zoom WebinarCENTRAL TIME ZONE Join our upcoming webinar to explore the benefits and considerations of using Botox for managing symptoms like tremor, dystonia, spasticity, and neuropathic pain. This session will cover everything from the basics of Botox, how it works, and who might be a candidate, to the potential side effects and how to find experienced
All About SCA28 and SPAX5
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 28 (SCA28) and Autosomal Recessive Spastic Ataxia type 5 (SPAX5), the typical diagnostic journey for those affected, and what to expect for clinical care. Anyone with symptoms caused by mutations in
