NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF, FARA, and more than 100 volunteer advocates will come together to raise awareness about Ataxia and supporting legislation that directly impacts our community. The third United Against Ataxia Hill Read More…
What does a placebo mean? A placebo is a simulated substance that has no therapeutic effect or active ingredients. Often, a placebo looks, feels, and tastes like other therapies being Read More…
I have Ataxia and encephalitis; Spinocerebellar Atrophy (SCA) was “identified” from a MRI in 1990. The SCA is an evolving situation, from stumbling, to walker, to wheelchair. I’ve been housebound Read More…
Author: Sue Hagen, Research Services Director I recently attended the virtual annual meeting of the Drug Information Association. I took in four days of sessions, all relating to topics of Read More…
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