*NEW* Ataxia treatment pipeline launched! It is a visual look at drug development progress. LEARN MORE!

National Ataxia Foundation


Month: August 2021

2021 United Against Ataxia Hill Day

NAF, FARA, and more than 100 volunteer advocates will come together to raise awareness about Ataxia and supporting legislation that directly impacts our community.  The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. Ataxia advocates will speak to their Congressional Members to make the four asks listed below. Feel Read More…

Placebo-Controlled Trials

What does a placebo mean? A placebo is a simulated substance that has no therapeutic effect or active ingredients. Often, a placebo looks, feels, and tastes like other therapies being tested in the clinical trial. What is the placebo effect, and why is it important? https://www.youtube.com/watch?v=5RhG_ySxhDA Why are placebo-controlled trials done? Placebo-controlled trials are done Read More…

Norman Heryford

I have Ataxia and encephalitis; Spinocerebellar Atrophy (SCA) was “identified” from a MRI in 1990.   The SCA is an evolving situation, from stumbling, to walker, to wheelchair.  I’ve been housebound for many years (the Covid virus doesn’t seem a big deal.).  Some think Agent Orange is the cause and other doctors think the problem is Read More…

Nothing About Us Without Us

National Ataxia Foundation

Author: Sue Hagen, Research Services Director I recently attended the virtual annual meeting of the Drug Information Association. I took in four days of sessions, all relating to topics of interest to all stakeholders involved in drug discovery and development. My head is still spinning! While you would think that a conference on drug development Read More…

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