2022 AAC session recordings are now available! LEARN MORE

National Ataxia Foundation

2022 AAC

2022 Annual Ataxia Conference

March 17-19, 2022

A Virtual Experience

AAC is more than just a conference. It’s an online gathering place where Ataxia clinicians share strategies to help you manage care, people affected by Ataxia network with peers and build relationships that last far beyond the conference, and everyone works together to accelerate treatment development. Thank you to those who were a part of it in 2022!

Living with Ataxia is a journey that should not be taken alone. More than 700 attendees joined us at the virtual 2022 AAC to connect, learn, and take action toward a cure. From Care to Cure, NAF will be with you on the journey.

View recordings of sessions below.

General Sessions

Keynote Address: From Care to Cure

Clinical Trial Readiness

 

Ataxia Biomarkers and Why They’re Important

Breakout Sessions

Ataxia Support Groups

Ataxia, Assistive Technology, and Swallowing

Balance Training and Fall Prevention

Care for the Care Partners

Cognition, Emotion, and PROM-ataxia

Family Planning

Insights from the Social Worker

Letter of Intent

Newly Diagnosed

Physical Therapy Strategies

Psychological Aspects of Ataxia

Transitioning to Adulthood with Ataxia

Chair Yoga and Mobility 1

Chair Yoga and Mobility 2

2022 AAC Award Ceremony

Sessions

Below are the topics that were covered at 2022 AAC. 

GENERAL SESSIONS

BREAKOUT SESSION 1 OPTIONS

BREAKOUT SESSION 2 OPTIONS

BREAKOUT SESSION 3 OPTIONS

Birds of a Feather Sessions

One of the most beloved features of AAC are the Birds of a Feather sessions. Because you enjoy them so much, we moved them to the first day of the conference! These smaller breakout sessions group you with other people who have the same type of Ataxia or are in a similar situation. They are more interactive, with opportunities to share with one another. Discussions are led by Ataxia professionals. 

Speakers

NAF invites world-leading Ataxia researchers and physicians to present at AAC. 

Vikram Shakkottai, MD, PhD

Vikram Shakkottai, MD, PhD

KEYNOTE SPEAKER
Neurologist
UT Southwestern Medical Center

Lauren Moore, PhD

KEYNOTE SPEAKER
Chief Scientific Officer
National Ataxia Foundation

Susie Jones

KEYNOTE SPEAKER
Reporter
WCCO Radio

Kristin Barañano, MD

Kristin Barañano, MD, PhD

Pediatric Neurologist
Kennedy Krieger Institute

Cal and Schyler Bearman

Community Members

Melissa Beiner, MD

Director of Research and Development
Biohaven Pharmaceuticals

Matthew Bower, MS, LGC

Matthew Bower, MS, LGC

Certified Genetic Counselor
University of Minnesota

Beth Bowerman

Research Services Coordinator
National Ataxia Foundation

Carolyn Buchanan, MA, CCC-SLP, ATP, CBIS

Clinical Instructor
University of Central Florida

Erin Cecchi, MSW

Clinical Social Worker
University of Michigan Movement Disorders & Northwestern University Parkinson’s and Movement Disorder Program

Charlotte DePew

Ataxia Support Group Leader

Cindy De Mint

Ataxia Support Group Leader

Lee Dyson

DJ/MC, Owner
HEY MISTER DJ

Todd Fix, MA, CCC/SLP, CBIS

Associate Instructor
University of Central Florida

Elizabeth Foss, OTR/L

Occupational Therapist
Little Steps, Big Gains

Sherri Hubbard

Ataxia Support Group Leader

Jerry Hulick, CLU, ChFC, ChSNC, CLTC

Chartered Special Needs Consultant
MassMutual

Jennifer Keller, PT, MS

Research Physical Therapist
Kennedy Krieger Institute

Stephanie Leonard

Community Member

Natalie Marnica

Natalie Marnica

Certified Yoga Therapist
Sacred Mountain Yoga

Dana Mauro

Ataxia Support Group Leader

Tamara McCord, MA, LMHC, LCAC

Co-Owner; Mental Health Therapist
Imagine Hope Counseling Group

Hayley McLoughlin, PhD

Assistant Professor – Neurology Department
University of Michigan

Jennifer Millar, MSPT

Physical Therapist
Johns Hopkins Medical Institutions

Courtney Ng

Community Member

Puneet Opal, MD, PhD

Professor of Neurology
Northwestern Medicine

Frank Orlowski

Community Member

Kelly Piacenti, MA, ChSNC

Head of SpecialCare
MassMutual

Sarah Pilato

Program Coordinator
National Ataxia Foundation

Andrew Rosen

Andrew Rosen

Executive Director
National Ataxia Foundation

Liana Rosenthal, MD, PhD

Neurologist
Johns Hopkins University

Jeremy Schmahmann, MD, FAAN, FANA, FANPA

Neurologist
Massachusetts General Hospital

Joel Sutherland

Joel Sutherland

Development Director
National Ataxia Foundation

Kristy Taylor

Community Member

Frank Tinari, PhD

Professor Emeritus
Seton Hall University

George Wilmot, MD, PhD

George Wilmot, MD, PhD

Neurologist
Emory University

Sponsors

Thanks to our partners below for their support of 2022 AAC! Stay tuned for announcement of additional partners.

Interested in sponsoring our event? Contact Joel Sutherland at joel@ataxia.org for more information. 

LEARN ABOUT SPONSORING AAC >>

Visit the 2022 Exhibit Hall

AAC attendees enjoyed visiting the Exhibit Hall to learn about products, services, Ataxia clinics, and research opportunities. Since it was virtual – you can still visit it now!

General Questions

If you have other questions about AAC, please contact Sarah Pilato at sarah@ataxia.org for more information or call us at 763-553-0020. 

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