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2022 Annual Ataxia Conference

March 17-19, 2022

A Virtual Experience

AAC is more than just a conference. It’s an online gathering place where Ataxia clinicians share strategies to help you manage care, people affected by Ataxia network with peers and build relationships that last far beyond the conference, and everyone works together to accelerate treatment development. Be a part of it!

Living with Ataxia is a journey that should not be taken alone. Join us at the virtual 2022 AAC to connect, learn, and take action toward a cure. From Care to Cure, NAF will be with you on the journey.

Registration Information

Virtual registration covers access to the online platform which will include exclusive virtual sessions from top Ataxia experts, networking opportunities, a virtual exhibit hall, and more!

Virtual Attendee


$ 50 per attendee
  •  
SPECIAL RATE

Industry Representative


$ 500 per attendee
  •  

Sessions

Below are the topics that you can look forward to learning about at 2022 AAC. 
(Schedule is subject to change.)

GENERAL SESSIONS

BREAKOUT SESSION 1 OPTIONS

BREAKOUT SESSION 2 OPTIONS

BREAKOUT SESSION 3 OPTIONS

Birds of a Feather Sessions

One of the most beloved features of AAC are the Birds of a Feather sessions. Because you enjoy them so much, we moved them to the first day of the conference! These smaller breakout sessions group you with other people who have the same type of Ataxia or are in a similar situation. They are more interactive, with opportunities to share with one another. Discussions are led by Ataxia professionals. 

Agenda

All times noted are in Central Daylight Time (CDT).
(Schedule is subject to change.)

Download Agenda (links to PDF)

Thursday, March 17, 2022

11:00 AM – 11:10 AM

11:15 AM – 12:00 PM

12:15 PM – 1:00 PM

2:00 PM – 4:00 PM

Daily Welcome

Keynote Address: From Care to Cure

Networking Session

Birds of a Feather Breakout Sessions

Friday, March 18, 2022

11:00 AM – 11:10 AM

11:15 AM – 12:00 PM

12:15 PM – 1:00 PM

2:00 PM – 3:00 PM

3:15 PM – 4:00 PM

Daily Welcome

Living with Ataxia Hacks

Breakout Session 1

Networking Session

Breakout Session 2

Saturday, March 19, 2022

11:00 AM – 11:10 AM

11:15 AM – 12:00 PM

12:15 PM – 1:00 PM

2:00 PM – 3:00 PM

3:15 PM – 4:00 PM

4:30 PM – 5:30 PM

Daily Welcome

Clinical Trial Readiness

Networking Session

Ataxia Biomarkers and Why They’re Important

Breakout Session 3

Awards Ceremony & Dance Party

Registration Scholarships

We understand that the registration cost can be too great of a financial burden for some. We want everyone to have an opportunity to experience AAC. NAF will be awarding a limited number of registration scholarships for the virtual event to low-income individuals with Ataxia.

Virtual AAC Registration Scholarship

  • Complimentary virtual registration 
  • Apply by 3/1/2022 – https://www.surveymonkey.com/r/2DHZH2Q

Speakers

NAF invites world-leading Ataxia researchers and physicians to present at AAC. 

Vikram Shakkottai, MD, PhD

Vikram Shakkottai, MD, PhD

KEYNOTE SPEAKER
Neurologist
UT Southwestern Medical Center

Kristin Barañano, MD

Kristin Barañano, MD, PhD

Pediatric Neurologist
Kennedy Krieger Institute

Cal Bearman

Community Member

Schyler Hect Bearman

Community Member

Matthew Bower, MS, LGC

Matthew Bower, MS, LGC

Certified Genetic Counselor
University of Minnesota

Carolyn Buchanan, MA, CCC-SLP, ATP, CBIS

Clinical Instructor
University of Central Florida

Erin Cecchi, MSW

Clinical Social Worker
University of Michigan Movement Disorders & Northwestern University Parkinson’s and Movement Disorder Program

Jonas Cepkauskas

Community Member

Cameryn Cobb

Community Member

Laura Cobb

Community Member

Charlotte DePew

Ataxia Support Group Leader

Cindy de Mint

Ataxia Support Group Leader

Elizabeth Foss, OTR/L

Occupational Therapist
Little Steps, Big Gains

Sherri Hubbard

Ataxia Support Group Leader

Jerry Hulick, CLU, ChFC, ChSNC, CLTC

Chartered Special Needs Consultant
MassMutual

Jennifer Keller, PT, MS

Research Physical Therapist
Kennedy Krieger Institute

Stephanie Leonard

Community Member

Dana Mauro

Ataxia Support Group Leader

Tamara McCord, MA, LMHC, LCAC

Co-Owner; Mental Health Therapist
Imagine Hope Counseling Group

Hayley McLoughlin, PhD

Assistant Professor – Neurology Department
University of Michigan

Jennifer Millar, MSPT

Physical Therapist
Johns Hopkins Medical Institutions

Lauren Moore, PhD

KEYNOTE SPEAKER
Chief Scientific Officer
National Ataxia Foundation

Puneet Opal, MD, PhD

Professor of Neurology
Northwestern Medicine

Frank Orlowski

Community Member

Kelly Piacenti, MA, ChSNC

Head of SpecialCare
MassMutual

Sarah Pilato

Program Coordinator
National Ataxia Foundation

Andrew Rosen

Andrew Rosen

Executive Director
National Ataxia Foundation

Liana Rosenthal, MD, PhD

Neurologist
Johns Hopkins University

Jeremy Schmahmann, MD, FAAN, FANA, FANPA

Neurologist
Massachusetts General Hospital

Joel Sutherland

Joel Sutherland

Development Director
National Ataxia Foundation

Frank Tinari, PhD

Professor Emeritus
Seton Hall University

George Wilmot, MD, PhD

George Wilmot, MD, PhD

Neurologist
Emory University

Sponsors

Thanks to our partners below for their support of 2022 AAC! Stay tuned for announcement of additional partners.

Interested in sponsoring our event? Contact Joel Sutherland at joel@ataxia.org for more information. 

LEARN ABOUT SPONSORING AAC >>

Exhibit at AAC

AAC attendees enjoy visiting the Ataxia Marketplace to learn about products, services, Ataxia clinics, and research opportunities. Check out our virtual exhibit package.

Contact Jon Wegman at jon@ataxia.org for more information. 

DOWNLOAD EXHIBITOR FLYER >>

Volunteer Opportunities

We rely on the kindness of our volunteers to help us make AAC a success. For our virtual event, we are looking for networking lounge monitors. Reach out for more information or to sign up for a shift. As little as an hour is a huge help! Contact Sarah Pilato at sarah@ataxia.org for more information. 

General Questions

If you have other questions about AAC, please contact Sarah Pilato at sarah@ataxia.org for more information or call us at 763-553-0020. 

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