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2022 Annual Ataxia Conference

March 17-19, 2022

NAF's first hybrid event - choose how to attend

Caribe Royale Resort

Orlando, Florida

Virtual Platform

Online access from anywhere

We look forward to seeing everyone in-person again at the 2022 AAC! For those who can’t make the trip to Orlando, we invite you to join us virtually!   

2022 Annual Ataxia Conference

We are excited to offer a hybrid event for our 2022 conference. We feel this is the best way to provide options that fit every need. For those joining us in-person in Orlando, Florida – you can expect all of the popular favorites of our traditional annual conference. For those joining us online – you’ll see the same great general sessions and have a virtual experience that allows you to learn, network, and enjoy the conference from the comfort of your home.

Important Dates

COVID Travel Arrangements Recommendation

COVID-19 is a rapidly evolving situation and we are monitoring the situation closely. At present, we are still planning and preparing for an in-person conference. However, we are developing contingency plans that will allow a quick response to changing conditions. These include postponing the event or pivoting to a fully virtual conference. We plan to provide further updates by the end of 2021. We recommend that attendees do not book non-refundable travel until after that time.

Registration Information

Choose how you’d like to join us at the 2022 Annual Ataxia Conference! In-person registration covers admission to all functions at AAC, including general sessions, a welcome reception, Lunch-n-Learn sessions, Birds of a Feather sessions, the exhibitor hall, and the Saturday banquet dinner as well as complimentary access to the virtual platform. Virtual registration covers access to the online platform which will include live-streamed general sessions from Orlando, exclusive virtual sessions, a virtual exhibit hall, and networking opportunities.


Early-Bird Pricing
$ 175 Available through 1/16/2022
  • Save $50

Virtual Only

$ 50 per attendee
  • Online access

Industry Representative

$ 500 per attendee
  • In-person and online access

Hotel & Travel Information

The 2022 Annual Ataxia Conference will be held at the Caribe Royale Resort at 8101 World Center Drive in Orlando, Florida. It is 15.5 miles from the Orlando International Airport.

Hotel Reservations

NAF will offer a discounted group rate for hotel room reservations. The standard resort fee is waived for conference attendees booked inside the NAF room block. Group rates are available until February 19, 2022 on a first-come, first-served basis. 

Group Rates (per night)

Standard Suite – $169 +tax
Deluxe King Suite – $189 +tax
Villas – $229 +tax

ADA Room Reservations

ADA rooms are limited and cannot be reserved through the hotel. They must be requested through NAF. ADA room reservations are now open. Email your request to or call 763-553-0093 and leave a voicemail with your name and contact information to be added to the waiting list for an ADA room. Calls and emails will be time-stamped and processed in the order they were received. ADA room reservations will be available on a first-come, first-serve basis.
For questions about ADA room availability, contact Sarah Pilato, Program Coordinator at 763-553-0093 or

Non-ADA Room Reservations

Non-ADA rooms must be booked directly through Caribe Royale Resort. You can book online with the group rate link or by phone at (800) 823-8300. When booking a reservation by phone, ask to make a reservation with “National Ataxia Foundation” as an “NAF Attendee” to receive the group rate.are

Additional Travel Info

Whether you’re looking for a quick getaway between sessions or an all-day excursion for your family or friends, Orlando offers something for every schedule and every interest. Check out the link below to explore things to do in the area, and find deals and tickets for local attractions.

Orlando Visitors Link:

Local Airport:
Orlando International Airport (MCO)
1 Jeff Fuqua Blvd
Orlando, FL 32827
Approximately 16 miles from hotel

Travel Grant and Registration Scholarships

We understand that registration and travel costs can be too great of a financial burden for some. We want everyone to have an opportunity to experience AAC. NAF will be awarding a limited number of Travel Grants for the in-person event and registration scholarships for the virtual event to low-income individuals with Ataxia.

AAC Travel Grant 

  • Complimentary in-person registration 
  • $600 travel cost reimbursement

Virtual AAC Registration Scholarship

Agenda At-a-Glance

Thursday, March 17th

12pm - 5pm
Day 1
  • Onsite Check In
  • Welcome & Orientation
  • AAC Newcomers Session
  • Newly Diagnosed with Ataxia

Friday, March 18th

8am - 7pm
Day 2
  • General Sessions
  • Breakout Sessions
  • Networking Opportunities
  • Welcome Reception

Saturday, March 19th

8am - 9pm
Day 3
  • General Sessions
  • Breakout Sessions
  • Networking Opportunties
  • Banquet Dinner


NAF invites world-leading Ataxia researchers and physicians to present at AAC. 

Vikram Shakkottai, MD, PhD

Vikram Shakkottai, MD, PhD

University of Michigan Ataxia Center

Kristin Barañano, MD

Kristin Barañano, MD, PhD

Pediatric Neurologist
Kennedy Krieger Institute

Matthew Bower, MS, LGC

Matthew Bower, MS, LGC

Certified Genetic Counselor
University of Minnesota

Cameryn Cobb

Community Member

Devin Cobb

Community Member

Laura Cobb

Community Member

Cindy de Mint

Ataxia Support Group Leader
National Ataxia Foundation

Charlotte DePew

Ataxia Support Group Leader
National Ataxia Foundation

Elizabeth Foss, OTR/L

Occupational Therapist

Jerry Hulick, CLU, ChFC, ChSNC, CLTC


Jennifer Keller, PT, MS

Research Physical Therapist
Kennedy Krieger Institute

Tamara McCord

Co-Owner; Mental Health Therapist
Imagine Hope Counseling Group

Hayley McLoughlin, PhD

Assistant Professor – Neurology Department
University of Michigan

Jennifer Millar, MSPT

Physical Therapist
Johns Hopkins Medical Institutions

Puneet Opal, MD, PhD

Professor of Neurology
Northwestern Medicine

Frank Orlowski

Community Member

Kelly Piacenti, MA, ChSNC

Head of SpecialCare

Sarah Pilato

Program Coordinator
National Ataxia Foundation

Andrew Rosen

Andrew Rosen

Executive Director
National Ataxia Foundation

Liana Rosenthal, MD, PhD

Johns Hopkins University

Joel Sutherland

Joel Sutherland

Development Director
National Ataxia Foundation

George Wilmot, MD, PhD

George Wilmot, MD, PhD

Emory University


Thanks to our partners below for their support of 2022 AAC! Stay tuned for announcement of additional partners.

Interested in sponsoring our event? Contact Joel Sutherland at for more information. 


Exhibit at AAC

AAC attendees enjoy visiting the Ataxia Marketplace to learn about products, services, Ataxia clinics, and research opportunities. For our hybrid event, we have in-person and virtual-only exhibit packages available.

Contact Jon Wegman at for more information. 


Volunteer Opportunities

We rely on the kindness of our volunteers to help us make AAC a success. We have many different jobs for many different ability levels – reach out for more information or to sign up for a shift. As little as an hour is a huge help! Contact Sarah Pilato at for more information. 

Available Positions

  • Registration
  • Welcome Bag Assembly
  • Greeter/Director
  • Welcome Reception Door Openers
  • Banquet Seating
  • Ballroom Raffle Ticket Sellers

General Questions

If you have other questions about AAC, please contact Sarah Pilato at for more information or call us at 763-553-0020. 

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