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A designation to recognize centers that provide comprehensive care and services for individuals affected by Ataxia and their families.
NAF’s Ataxia Centers of Excellence (ACE) program is to designate exceptional regional centers providing comprehensive care and services for individuals affected by Ataxia and their families. In addition to providing expert clinical care for a variety of Ataxias and Ataxia-related disorders, the Centers should be engaged in clinical research and/or clinical trials, provide professional and lay education to patients and their families in the areas they serve, and work with NAF locally and nationally in its efforts to continually improve the lives of those affected by Ataxia.
Current NAF Ataxia Centers of Excellence in the United States are listed on the map below. Select a state to view more information. International ACE’s are listed in alphabetical order below the map.
Map Key:
Blue states have at least one ACE clinic; White states do not have an ACE clinic.
Stars indicate the location of an ACE clinic.
North Territory, Australia
Website: mjd.org.au
Phone: 1300 584 122
Detailed Information: Click here to learn more.
Lima, Peru
Website: www.incn.gob.pe
Phone: 511 4117700
Detailed Information: Click here to learn more.
Melbourne, Australia
Website: eyeandear.org.au/
Phone: 03 9929 8666
Detailed Information: Click here to learn more.
London, UK
Website: www.uclh.nhs.uk
Phone: 020 3448 3100
Detailed Information: Click here to learn more.
Montréal, QC
Website: www.chumontreal.qc.ca
Phone: 514 890-8000
Detailed Information: Click here to learn more.
Bonn, Germany
Website: www.ukbonn.de/
Phone: 49 228 2870
Detailed Information: Click here to learn more.
Comprehensive Clinical Care
at least .5 FTE combined dedicated clinical time to ataxia between neurologist and Advanced Practice Practitioners
Professional Training and Research
Community Education and Outreach
NAF accepts applications two times per year. If approved, designated centers will maintain their recommendation for five years from the date of approval, at which time they will be required to re-submit a proposal for review. Selected sites must meet annual reporting requirements to maintain ACE designation.
For full details about applying, visit www.ataxia.org/ACE/apply. If you have any questions, email Kelsey Trace at kelsey@ataxia.org.
APPLICATION CYCLE
March 1, 2024 –
May 31, 2024
June 1, 2024 –
September 30, 2024
APPLICATION DUE DATE
End of Business Day –
May 31, 2024
End of Business Day –
September 30, 2024
DECISION COMMUNICATED BY
July 15, 2024
November 15, 2024
START/
END DATE
August 2024 /
July 2029
December 2024 /
November 2029
Applications will be reviewed by a committee composed of NAF staff, representatives from the NAF Medical Research and Advisory Board, an industry representative from NAF’s Drug Development Collaborative, and a patient representative. All applications will be scored, using the following criteria:
The scoring of applications is part of an internal review process. Therefore, scores will not be shared with any site applying for designation, regardless of whether the site is given designation. Following review of the application, applicants not selected for designation may request a virtual meeting to discuss avenues to strengthen future applications.
If you have any questions about NAF’s Ataxia Center of Excellence designation, contact our Research Services Director, Kelsey Trace, at kelsey@ataxia.org.
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