NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
A designation to recognize centers that provide comprehensive care and services for individuals affected by Ataxia and their families.
Comprehensive Clinical Care
OR
at least .5 FTE combined dedicated clinical time to ataxia between neurologist and Advanced Practice Practitioners
Professional Training and Research
Community Education and Outreach
The 2025 application cycle is now open. Applications are due by the end of the business day on October 15, 2025
If you have any questions, email Kelsey Trace at kelsey@ataxia.org.
APPLICATION CYCLE
June 17 2025 –
October 15, 2025
APPLICATION DUE DATE
End of Business Day –
October 15, 2025
DECISION COMMUNICATED BY
Early-Mid December 2025
START/
END DATE
January 2026 /
December 2030
Applications will be reviewed by a committee composed of NAF staff, representatives from the NAF Medical Research and Advisory Board, an industry representative from NAF’s Drug Development Collaborative, and a patient representative. All applications will be scored, using the following criteria:
The scoring of applications is part of an internal review process. Therefore, scores will not be shared with any site applying for designation, regardless of whether the site is given designation. Following review of the application, applicants not selected for designation may request a virtual meeting to discuss avenues to strengthen future applications.
If you have any questions about NAF’s Ataxia Center of Excellence designation, contact our Research Services Director, Kelsey Trace, at kelsey@ataxia.org.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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