Join our “Ask the Ataxia Expert” session with Dr. Susan Perlman on May 12th at 11:30 AM CDT.  ADD TO CALENDAR

Blog

Don’t Skip AAC in Denver Because of Weather – Here’s Why

Author: Linda Snider Sidwell, MD, NAF Board Member and Support Group Leader The 2020 Annual Ataxia Conference in Denver, Colorado is going to be a world class conference with scientists, pharmaceutical companies, and of most importantly, Ataxians. I’m hoping to see you there. Why do you want to come to Denver you Read More…

Print Friendly, PDF & Email

Webinars

NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living with Ataxia. Webinars are complimentary for NAF members. Join NAF to receive notices about upcoming Ataxia webinars.  Live webinars are only available to NAF members. However, most are recorded and made available to anyone here. Read More…

Print Friendly, PDF & Email

Ataxia Community Links

It can be hard to connect with other people who have Ataxia. NAF has a number of support groups around the country to help you learn and meet others. There are also lots of great online resources from other members of the Ataxia community. Finding them can be difficult if Read More…

Print Friendly, PDF & Email

Meet Others Under 30 with Ataxia at 2020 AAC

Author: Lauren Sormani, NAF Support Group Leader I was diagnosed with Spinocerebellar Ataxia Type 8 in 2017 when I was 21 years old. A few months after my diagnosis I found a support group near me and I attended. I was thrilled to meet other people with Ataxia, but what Read More…

Print Friendly, PDF & Email

Ataxia Genetic Test Options

Working with your doctor to obtain a diagnosis can be difficult, especially with a rare disease. Medical history, family history, and a neurological evaluation are used to diagnose Ataxia. Various blood tests may also be used to rule out other disorders. Your doctor may recommend genetic testing if a hereditary Read More…

Print Friendly, PDF & Email

Want to be a guest blogger?

Submit your name and blog topic. We’ll follow up with submission instructions.

Print Friendly, PDF & Email
Translate »