Taking part in research is one way to help accelerate the development of treatments for ataxia. Some people like playing an active role in improving our understanding of ataxia by participating in clinical trials and other research studies.
However, participating in research is a deeply personal choice. There are a lot of things to consider. Things to consider about research studies include the potential risks and benefits, the procedures involved, where the study is taking place, and how much time it takes to be a participant.
But how do you learn more about what research studies are happening? You can find up-to-date information on research opportunities on the Participate in Ataxia Research page of the National Ataxia Foundation website. Here you can find:
- Listings of clinical trials and research studies actively looking for ataxia patient participants
- How to join the CoRDS Ataxia Patient Registry, a confidential list of ataxia patients and unaffected family members who are interested in being contacted about upcoming clinical trials or studies
- How to enroll in the NAF Brain Donation Program, which is one way to leave a legacy gift to advance ataxia research after your passing
Discover more about each section of the Participate in Ataxia Research page in the video below.